Sarah discusses her fears about her multiple sclerosis prognosis.
I do. I do. I do worry about my MS progressing, whether or not I will be able to care for my children the way I want. I worry when something strange is going on in my body: Is this MS or something else? And I try to just take as best care of myself as I can, but I do worry, but there’s also not a lot I can do about it. My husband and I have talked about it.
The next time we buy or build our house, we’ll look at something maybe that we can stay in forever if my MS gets worse. Our house is not accessible right now, but, you know, we are aware that that might be something we have to do in the future. Or what are we going to do about the children and how we are going to live a life if I get worse?
And I don’t want to say resigned myself to that, yes, some day it will get worse, but I have accepted that that is a possibility. But I am not going to let it stop me. Things like, I know people who are afraid to take the step to a wheelchair or scooter because of what it signifies, but I have made the decision--and it’s easy for me to say now because I don’t need one--but I have made the decision that when it’s time, that’s the first thing I am going to do is that I don’t want to be held back by my MS. Whatever I need to do to keep moving forward, I will do and whether it’s new treatments or adaptive technologies like scooters or walkers, I’ll use.
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