Hide This

FREEHER HealthToolkit

HER Health Toolkit

Sign up for EmpowHER updates and you'll receive our
FREE HER Health Toolkit

Autism

Get Email Updates

Related Topics

Autism Guide

Alison Beaver

Have a question? We're here to help. Ask the Community.

ASK

Health Newsletter

Receive the latest and greatest in women's health and wellness from EmpowHER - for free!

Autism Spectrum Disorder: When the World Doesn’t Understand

By Darlene Oakley HERWriter
 
Rate This
Autism Spectrum Disorder: When the World Doesn’t Understand 3 5 16
autism spectrum disorder: sometimes the world just can't understand
iStockphoto/Thinkstock

I often write articles on what having a particular medical condition may be like and ways to cope with it or prevent flare ups. But very few of my articles tell the other side of the story — what it’s like to be a parent, caregiver, guardian of someone with a particular disorder, condition, or illness.

As a parent of an ASD child, I thought I'd change my usual article-writing topics this time.

What it’s Like Being an ASD Parent

Parents of children with an autism spectrum disorder face a slightly different experience than parents of children who have more obvious disabilities (i.e., being in a wheelchair) because many children on the autism spectrum appear “normal”. And because the child appears normal, people don’t know that he sees and processes the world completely differently.

Many parents have experienced the glares from other grocery shoppers or restaurant patrons when a child has a temper tantrum. You know, the “why don’t you discipline your child better” type of glare.

They don’t know it’s not a discipline issue. They don’t know that this is your child’s only way of dealing with the stress of strangers around, bright lights, the din of people talking and towering shelves with a dizzying array of colors.

Again, to many people, children on the autism spectrum appear “normal” — but inside, they're very different.

What is Autism Spectrum Disorder?

Autism spectrum disorder (ASD) is an umbrella term used to describe a variety of disabilities, including autism, Aspergers syndrome, and other cognitive disorders, ranging from very mild to extreme. (4)

For a child with ASD, a “meltdown” is simply because his world is too overwhelming for him to process. It has nothing to do with anger or being belligerent and not getting his way. It’s about everything in the world around him — things that seem ordinary to us, but are major to him.

In general, ASD kids have to try so much harder to do the ordinary things other children and parents take for granted — personal hygiene, talking, identifying with people, understanding body language, reading, writing and personal organization.

Add a Comment9 Comments

EmpowHER Guest
Anonymous

This article really does not do any justice to what it means or the effort it takes to deal day to day with a child with autism. Its articles like this that make it seems if its like dealing with teething child then dealing with an on going struggle. I am not claiming that all circumstances are the same or that my childs autism is made life more or less hard for anyone else dealing with it. The article seems to be less researched then I would hope and more of a fluff piece than an actual attempt to inform or help any family.

Please in the future do not right a half hearted book report instead of actually doing research and field work.

December 15, 2012 - 1:22am
Darlene Oakley HERWriter (reply to Anonymous)

That wasn't the purpose of this article. I wasn't trying to describe what it's like to take care of an autistic child. It was an experiential piece written from my experience as an ASD parent and from a discussion I recently had with other ASD moms about how the public perceives and how they react to something they know little about.

Obviously you were looking for a different article.

Honestly, I couldn't write an article about the all the challenges of taking care of an autistic child because each child is different. Mine is very high performing, while I know others who are non-verbal and far more severe than my son. Those experiences would be different from mine. I don't think one could write an all-encompassing article like that because there are so many variables in autism that makes each parent's experience different.

December 15, 2012 - 5:57am
Angelina Willium_2

Deal with Autism and autism kid is really tough to handle your life.
Society people and their awareness about this is very limited, live with autism is really tough. Need to become strong from inside.

November 26, 2012 - 12:20am
EmpowHER Guest
Anonymous

Surprisingly, assistance dogs can be a great help for children with autism (and their parents). See here: Leash-On-Life program of Tender Loving Canines Assistance Dogs-- http://www.tenderlovingcanines.org/programs/Autism-Service-Dogs.aspx

November 21, 2012 - 11:11am
EmpowHER Guest
Anonymous

Great article. Touches on a problems lots of families share these days.

November 21, 2012 - 9:22am
EmpowHER Guest
Anonymous

I work with some kids with autism at school, and even though everyone knows they're in Special Ed, most of the regular staff has no idea what they are really like or how they receive stimuli around them. I hear a lot of "Why can't they just..." "Why do you let them..." "What difference does it make if they have this one or that one?" I'm not a softie--I don't let kids play me just because they have a disability (and I have a few who try), but these kids with autism NEED certain things in order to function, and it makes me mad when other staff don't even try to understand. I wish I could put all those other people in a room with heavy metal blasting, strobe lights flashing, the temperature up to 90 or down to 40, scratchy material scraping their skin, and people up in their faces, and then tell them to use good manners and learn their school lessons. Our kids do learn manners and academics, and they are awesome, caring young men, but like you said, people just don't understand what they deal with. I doubt most of us could do half as well.

November 20, 2012 - 8:19pm
Darlene Oakley HERWriter (reply to Anonymous)

Well said.

November 21, 2012 - 2:37pm
Marielaina Perrone DDS Blogger

Having an autistic child is devastating to many families not only from costs involved but the stress it causes internally. Thanks for share.

November 15, 2012 - 11:14am
Darlene Oakley HERWriter (reply to Marielaina Perrone DDS)

You're welcome, Marielaina!

November 15, 2012 - 1:04pm
Image CAPTCHA
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy

We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.

Improved

1995 Health

Changed

844 Lives

Saved

718 Lives
10 lives impacted in the last 24 hrs Learn More

Take Our Featured Health Poll

Do you have a child who has been diagnosed with autism or Asperger's syndrome?:
View Results