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Juvenile Dermatomyositis (JDMS) recently diagnosed & have many questions

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My good friend's 4-year old daughter was just diagnosed with juvenile dermatomyositis on Wednesday, and we are scared and shocked! What does this mean for the long-term health of her daughter? My friend also has a 12 month old daughter; what is the likelihood that she would develop this disease, too? Any way to prevent it?

I was wondering if you all had access to a pediatric rheumatologist, as my friend has some questions she would like to ask (for a 2nd opinion, they really like their current doctor).

Here are some of our initial questions: