Hello, My name is Joan. I am a 54 year old woman that has endured severe vulvodynia for over one year. It has gotten to the point where my labia has fused, and now my clitoris is beginning to fuse.
I'm sorry to tell you, but your daughter has interstitial cystitis. Inter what? By the time we could actually say the two words together - we had discovered that we were in for a loooong haul.
Generally considered an older lady's disease - my 19 year old daughter had won the lottery without even buying a ticket. How do you get Interstitial Cystitis (IC) and why do you get it? Questions we posed to our general practitioner and to the urologist we were referred to.