I have had a chronic health condition for a quarter of a century that, due to lack of research, continues to be shrouded in mystery.
Chronic fatigue syndrome (CFS) is one of its foolish names, a wastebasket diagnosis that some doctors hand out when they don't know what's wrong. And some toss this label your way when they don't care to take the time to try to find out.
Myalgic encephalomyelitis (ME) is another name, which may or may not apply to me.
The condition is often referred to by an acronym of the mashup of these two names which is ME/CFS.
For years, there has been ongoing controversy and attempts to settle on a name that properly acknowledges the severity of this condition. As with everything else that remains unresolved concerning this illness ... we cannot even get a name that works.
Because there is so little known due to a pitiful lack of research, and because my symptoms did not show up in my pristine test results, it's a moot point as to what I call it. I'm really only interested in being rid of it.
The couple of times I tried the pharmaceutical approach, the drugs were either useless or made my health worse.
And with so many question marks as to my (non)diagnosis, it seemed like folly to me to throw drugs at it. If we don't know what is the matter, how dangerous could it be to medicate like throwing darts blindfolded.
If you have been diagnosed with ME, CFS or ME/CFS, and your experience is different from mine, or your conclusions differ, I wouldn't worry about it. Who knows whether we actually have the same illness?
All I can tell you about is my own ME/CFS experience. And my experience was that conventional medicine has been a complete failure for me.
I had gone for many rounds of different tests to a variety of specialists, all of whom found no problems. I had CT scans and an MRI, I went for an EEG and an EKG. I saw a couple of neurologists.
I had an interesting appointment with an ophthalmologist.