I don't think many people with Chronic Fatigue Syndrome see themselves as heroes. Or, maybe they do but they don't expect anyone else to see them in that light.
The limitations we face are so enormous that it can take everything we've got to accomplish very little at times. It goes against our grain, but we have to lower the bar for even small every day activities.
But the people with CFS who accomplish things, and those whose accomplishment is to just manage to keep breathing ... those who overcome their bonds, and those who must learn to rest within them are all heroes. Trying to move a rock that is too big, with energy that is too small and very often with next to no help from ... well, from anyone.
I have referred to our community in the past as a CFS Ghetto. But we are also a clan. Here's to the heroes of Clan CFS. My hat is off to every one of you.
1. To the heroes who manage to get up and go to work, then collapse when they get back home.
They use up all their precious teaspoons of energy to earn a living. Because they can work, people don't see them as ill. There's nothing left of them by the time the workday is over but there's no other way to pay the bills. And these are the lucky ones, who live a half-life.
2. To the heroes who stay home and raise their kids, from their beds and couches.
If they are lucky they have pensions or they have healthy spouses who shoulder the financial load. But their energy tank is always on E for empty as they give their tiny all to care for their families.
3. To the heroes who write about CFS in blogs, articles and websites.
This takes a lot of energy. And it requires the mental clarity that is so precious and rare in CFS. To protect this mental clarity, the rest of their time is spent regenerating, working up just a little more of that ability to get the word out that we exist.
4. To the heroes who must live cocooned away from the world.
Many people with CFS can't work, can't write, maybe can't read ... can't function as normal people think of functioning.