Veronica, As we wait to hear from some of our specialists, I did find some online resources and health organizations for you to look into, all related to dermatomyositis (not all specifically juvenile-onset).
The Journal of Pediatrics has some clinical-based studies and letters to editor related to JDMS (note: it is heavy medical wording and not patient-friendly reading): http://pediatrics.aappublications.org/cgi/search?andorexactfulltext=and&...
American Autoimmune Related Diseases Association, Inc. www.aarda.org
Arthritis Foundation www.arthritis.org
Muscular Dystrophy Association www.mdausa.org
Myositis Support Group www.myositis.org.uk
NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse www.niams.nih.gov
Myositis Association http://www.myositis.org
Autoimmune Information Network, Inc http://www.aininc.org
European Society for Immunodeficiencies (ESID) http://www.esid.org
AutoImmunity Community http://autoimmunitycommunity.org
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Veronica,
As we wait to hear from some of our specialists, I did find some online resources and health organizations for you to look into, all related to dermatomyositis (not all specifically juvenile-onset).
The Journal of Pediatrics has some clinical-based studies and letters to editor related to JDMS (note: it is heavy medical wording and not patient-friendly reading):
http://pediatrics.aappublications.org/cgi/search?andorexactfulltext=and&...
American Autoimmune Related Diseases Association, Inc.
www.aarda.org
Arthritis Foundation
www.arthritis.org
Muscular Dystrophy Association
www.mdausa.org
Myositis Support Group
www.myositis.org.uk
NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
www.niams.nih.gov
Myositis Association
http://www.myositis.org
Autoimmune Information Network, Inc
http://www.aininc.org
European Society for Immunodeficiencies (ESID)
http://www.esid.org
AutoImmunity Community
July 20, 2008 - 12:41pmhttp://autoimmunitycommunity.org
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