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Anonymous

I recently went in to have a partial hysterectomy done due to what was believed to just be a couple small fibroid tumors. Once inside, the surgeon found that I have Stage 4 Endometriosis (the worst case he has ever seen). Not only is endometriosis covering my ovaries and uterus, it has also covered my urinary tube, and has made my bowels, bladder, kidneys, and Colon a complete "sticky blob". He could not perform the surgery due to how severe it was and sent me to a cancer specialist. Once there, the Dr. checked me and found a mass behind an ovary and wants to do a biopsy on it. In the meantime, she decided that I would need to take Lupron shots for 4-6 months in order to shrink the endometriosis. According to them, if they were to go in immediately to do a full hysterectomy, the odds of me being on a bag for the rest of my life due to the removal of my colon, were very very high. I wasn't really sure about the shot and felt a little uneasy, but I was willing to try what I needed to in order for the daily bleeding and pain to stop. My first injection was on July 25, 2012 and for the first week I felt wonderful! Full of energy and not hurting or bleeding at all. By week 2, I noticed how stiff and sore I was getting. It would start at the bottom of my feet and would slowly move all the way up to my shoulders, so that by the time I went to bed at night I could hardly move. Also in week 2, I ended up starting my period and it was extremely pain and heavy. Since my period ended, the body aches and tiredness have completely worn me out. I work 40 hours a week and have 2 children and it is taking everything I have to just get up in the mornings. My next shot is scheduled for next Friday- August 24, 2012 and a CT scan is suppose to be done on my pelvic area. All of this is completely new to me because I've never been one to be "sick". With the Lupron shots, I am taking 10mg Lexapro daily to help with the emotional changes and it is helping a GREAT deal. The hot flashes are tolerable (maybe 1 a day- if that). I haven't experienced any night sweats. The only complaint- and a BIG one- is the muscle and joint pain. It is painful to get around some days and I feel like an old woman and I'm only 29. Good luck to anyone taking the shot and going through all of the treatment.

August 16, 2012 - 6:45am

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