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Oh no, my GYN was more than willing to run the test. He knew the dangers involved but did not tell me them. In fact, my Primary was quite impressed that he ran the whole panel of clotting disorders (there 6-7 of them).

One of the reasons testing is so controverial is the insurance companies use this as a reason for denial. Another reason it is so controversial is they (the medical community) have not found it to be beneficial to have family members tested. I felt that it was important for my 24 year old daughter to know if she could or could not use BCPs. I believe in prevention.

90% of us with one gene never clot. If I was homozeguous (2 genes), it would be a matter of when. But knowing has saved me. When I started complaining about some gyn issues this summer, the first thing everyone was suggesting was HRT. Once I said no and why, they understood perfectly. Had I not spoke up, I would have had a prescription in moments.

When I had my son tested, he was about 8. We saw a pediatric hemo and he told me I was on the right track educating my children about the signs and common prevention methods. I told his doctor I realize this might prevent him from going into the military or doing some other things but I felt it was more important to know and pretect his health. A clot can kill but it also can create a lifetime of pain and suffering from the health issues it creates as it damages your body.

Again, I want to thank you for talking about this, it is often overlooked and downplayed. It certainly has caused enough pain and suffering in my family.
Reta

October 14, 2009 - 11:31am

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