It sounds like you are covering all bases here. Monitoring is the best thing to do. It is the only way to see any changes and if the cyst is growing. I have never heard of a brain cyst going away on its own, and was told they don't typically. But I just don't know. If they are septated (walls of tissue built up inside), then that is how they can grow. The CSF fluid can make its way into the cyst, but gets trapped and unable to get back out and that is how they grow.
I started out with dizziness too, in the early stages of symptoms developing and the headaches were sporadic. It would feel like a "burning" type of headache...not a regular headache. Like pressure from the inside of my head pushing on the inside of my skull. Maybe you could try to get your son to describe things to you when they happen. Help him learn to verbalize what he feels. It really helps doctors to have a good description of what someone "feels."
The neurosurgeon I saw in Phoenix was Dr. Robert Spetzler at Barrows Neurological Institute. If you ever just want him to review his case, you can call his office and for a fee of $100.00, he'll review everything....latest MRI and other records and tests. He knew right away that my cyst was under pressure and I needed to have it fenestrated.....which you probably remember from reading my story.
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It sounds like you are covering all bases here. Monitoring is the best thing to do. It is the only way to see any changes and if the cyst is growing. I have never heard of a brain cyst going away on its own, and was told they don't typically. But I just don't know. If they are septated (walls of tissue built up inside), then that is how they can grow. The CSF fluid can make its way into the cyst, but gets trapped and unable to get back out and that is how they grow.
I started out with dizziness too, in the early stages of symptoms developing and the headaches were sporadic. It would feel like a "burning" type of headache...not a regular headache. Like pressure from the inside of my head pushing on the inside of my skull. Maybe you could try to get your son to describe things to you when they happen. Help him learn to verbalize what he feels. It really helps doctors to have a good description of what someone "feels."
The neurosurgeon I saw in Phoenix was Dr. Robert Spetzler at Barrows Neurological Institute. If you ever just want him to review his case, you can call his office and for a fee of $100.00, he'll review everything....latest MRI and other records and tests. He knew right away that my cyst was under pressure and I needed to have it fenestrated.....which you probably remember from reading my story.
Good luck and do keep in touch!
September 10, 2014 - 4:44amThis Comment
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