Hi,
So sorry to hear about your diagnosis. I know the feeling when you first find out about having a brain cyst. It's been 10 years and I still remember how lost and confused about everything, I was . Mine has caused a huge disruption to my life as well - in many, many ways. Most recently, this past summer, it was discovered my cerebral spinal fluid was so low - almost bottomed-out, and was causing horrific symptoms. I had to go through multiple spinal taps over this past summer and a shunt clamping due to the discovery that my shunt valve was faulty and leaking. They also discovered I didn't even really need the shunt anymore and they don't know for how long it had been that I didn't need it. Anyways, the bottom line is that it made me very ill and caused a lot of added neurological problems to the point where I had to move in with family - being unable to live on my own right now. My 2 boys (16 and 13) moved down to Atlanta (we were all in NC) and are with him fulltime now until I can get better and hopefully join them there one day. Am hoping the beginning of the year.
With my cyst there were no issues in fenestrating it. I don't think I ever had problems with scar tissue. It's amazing how different each of them is and the different problems and symptoms that can develop due to each one. I have always thought that I wished there were more known about brain cysts...that neurosurgeons had better answers on how to treat them etc. There seems to be so many different opinions and plans of actions with threating them, with different neurosurgeons.
I'm sure if you've seen my book online, "It's All in Your Head," but it tells the story of my journey with my Arachnoid cyst. I just had another lady contact me yesterday about ordering it for her son-in-law who has been battling with an Arachnoid cyst. It's available through Barnes and Noble and Amazon etc. You may find some similarities in our cases.
Keep me informed. If there is anything I can ever answer for you or help you with, let me know. Wishing you all the best in getting the best treatment and outcome with your brain cyst.
Comment Reply
Hi,
So sorry to hear about your diagnosis. I know the feeling when you first find out about having a brain cyst. It's been 10 years and I still remember how lost and confused about everything, I was . Mine has caused a huge disruption to my life as well - in many, many ways. Most recently, this past summer, it was discovered my cerebral spinal fluid was so low - almost bottomed-out, and was causing horrific symptoms. I had to go through multiple spinal taps over this past summer and a shunt clamping due to the discovery that my shunt valve was faulty and leaking. They also discovered I didn't even really need the shunt anymore and they don't know for how long it had been that I didn't need it. Anyways, the bottom line is that it made me very ill and caused a lot of added neurological problems to the point where I had to move in with family - being unable to live on my own right now. My 2 boys (16 and 13) moved down to Atlanta (we were all in NC) and are with him fulltime now until I can get better and hopefully join them there one day. Am hoping the beginning of the year.
With my cyst there were no issues in fenestrating it. I don't think I ever had problems with scar tissue. It's amazing how different each of them is and the different problems and symptoms that can develop due to each one. I have always thought that I wished there were more known about brain cysts...that neurosurgeons had better answers on how to treat them etc. There seems to be so many different opinions and plans of actions with threating them, with different neurosurgeons.
I'm sure if you've seen my book online, "It's All in Your Head," but it tells the story of my journey with my Arachnoid cyst. I just had another lady contact me yesterday about ordering it for her son-in-law who has been battling with an Arachnoid cyst. It's available through Barnes and Noble and Amazon etc. You may find some similarities in our cases.
Keep me informed. If there is anything I can ever answer for you or help you with, let me know. Wishing you all the best in getting the best treatment and outcome with your brain cyst.
Blessings -
Maria McCutchen
October 19, 2014 - 4:14amThis Comment
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