Facebook Pixel

Comment Reply

EmpowHER Guest
Anonymous

I am 28 and have a 6yr old daughter. I was diagnosed with a large posterior fossa arachnoid cyst at age 7. At that time the cyst was 5x5x2.5cm, and shunting was not an option as it would stop the csf flow, so over the years we have taken a wait and see approach. Well I have been trying to get drs to order an mri for years now since I have been having numbness and tingling in the extremities and severe pressure in my neck and head. Finally was able to get a dr to order an mri and before I even got the results I was told to make a appointment with a neurosurgeon. I have the apointment on Monday, but got my results from mri yesterday and I am in shock. I have been told that the smptoms were not from the cyst and it was all in my head. Well they were right, info I now have pending trip to neuro surgeon in 3 days is that the arachnoid cyst has grown to 6x6x7.2cm, I also have a 5x4.5x10mm pituitary cyst and a 4mm pineal cyst as well as. 12.3 mm kidney cyst. At this point I have resigned myself to the inevitable brain surgery but that thought is terrifying. Thankfully at this point thre is no chiarri malformation or syrinx, both of which my brother had. Now its just a at and see what the neurologist says and to see if there is even an option for shunting the cyst dueto size and where it sits. I'm totally scared but am looking forward to the possibility of some kind of relief

January 18, 2013 - 5:50pm

Reply

Image CAPTCHA
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy