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Anonymous

My wife was diagnosed with stage 4 pancretaic cancer in December 2012 after being told by a different specialist a month previoulsy that it was non cancerous and went on chemotherapy in March 2013 for palliative care. They changed the cocktail from a strong one to a weaker version in September 2013 and in between those months had three sessions in hospital dealing with high temperatures or bowel blockages put down to the mass growth or the treatment itself or even the drugs taken while on the chemotherapy. She went in to hospital on the 22nd December with a high tempetature and I received a phone call on the 22nd December to call in at the hospital on the 23rd when I was told that she had peritonitis which was not operable and would end her life in 2-3 days. They effectively gave up because of this and the fact that they did not know the exact origin of the peritonitis and considered that she would not survive an operation. I think that they were also mindful that she was in month 12 after diagnosis whereas most inoperable cases dont go beyond 6 months.

Had they killed a nerve carrying pain from the back to the front instead of trying different pain killers over and above the morphine whcih worked to manage most of the pain I guess she would not have had any major pain issues until the outbreak of the peritonitis. It was a step by step approach on the UK Health service and the medicine solution had to be tried before the nerve removal procedure.

Had to battle the medics for 1.5 hours to agree for her to return home to pass away in line with her wishes. A line driver delivering diamorphine controlled the pain and we managed to have eye communication only for the last 30 hours of her life.Beyond a certain point she lost consciousness and sadly passed away on the morning of 25 December 2013. The worse Christmas for the family ever but at least she is no longer in pain.

She had 7 cancellations and for a meeting with a consultant in the period March 2011 - December 2011 when pain first started but was never given explanations and a critical MRI scan was conveniently lost at some stage (probably when they looked back and found that a growth was apparent well before December 2012) The wife was not the type to make a fuss or chase for appointments and we miss her terribly.

June 6, 2014 - 9:40am

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