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Anonymous (reply to Anonymous)

It was interesting to hear your experiences as a medical student, Richelle. As a parent, I started out fully expecting the experts to lead the way and know the answers. That didn't entirely happen. I found myself forging my own way.

Unlike other illnesses, anorexia nervosa is one where parents often meet with exclusion or blame...we are in the waiting room while our children have nutrition appointments, doctor appointments, therapist appointments. We can feel very dis-invited and disempowered in our role as parent. It can leave us so in the dark.

I think if I were to ask the 'why' of a particular antibiotic, most doctors would give me a logical answer. The protocol would be standard and published. The 'why' of ED treatment seems a lot less clear and upfront as well as less uniform across care providers.

And, when the bills are what they are (my daughter's illness cost well over $100,000), parents need to have rights--to know what is going on, what services we are getting for our money, and how effective are those services.

anne

June 9, 2009 - 8:04pm

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