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My Grandfather had lupus, and multiple complications associated with it, such as skin cancer, colon and stomach cancer. Yet, he lived a very long and productive life. A very active man, he was known to walk as far as 25 miles in any given day, just to visit friends (he had his route planned so that he would always be on the shady side of the street) in our beach side community.

I was diagnosed with lupus in 1990, along with rheumatoid arthritis. I've had to deal with a host of issues, especially gastrointestinal and, most recently, lymphatic. Five years ago, I started training for a marathon. If my Grandfather could walk 25 miles, I could certainly walk or run 26.2. Just a little over a year ago, I was informed that I've had scoliosis and osteoarthritis for several years (I never knew). I run to keep my joints healthy. Sometimes, it's hard. But, it's harder to deal with a relapse and prednisone.

Lupus is not life-threatening - UNLESS there are underlying conditions that are simply too complex to combat. My SIL died last week of such underlying conditions that, over several years, made her immune system too weak to handle. I don't believe she represents the norm. She was never very active, nor did she have a very healthy lifestyle prior to her diagnosis.

So, the objective for us lupus patients - or, participants, as you like to say - is to get off our duffs and keep moving!

Good luck on your book!

June 16, 2009 - 5:06pm

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