Thank you Jody for this article. Only someone who has suffered from this can understand the unimaginably hurtful things people say. I'm almost used to people saying "But I get tired too" or "We ALL get tired", but usually it's from people I've just met (when the inevitable "what do you do?" question comes up), but when someone you thought was a friend, a best friend even can turn around and say "we all get tired" that's one that really cuts. Even my own father has been known to almost compete with me, that he's 63, he must be much more tired than I am (because he has emphysema, through his own choice to smoke!). I've had this illness for 18 years, and it has robbed me of my teens, youth, and all the things young people should be able to do, good and bad! No one can understand how that feels, unless they've walked the same path.
Having said that people can be almost cruel in their comments, I have to say the ones (and they are few and far between) that understand almost make up for the ignorant comments the rest make!
I will be posting a link to this site onto my facebook page, so my friend can have a read.
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Thank you Jody for this article. Only someone who has suffered from this can understand the unimaginably hurtful things people say. I'm almost used to people saying "But I get tired too" or "We ALL get tired", but usually it's from people I've just met (when the inevitable "what do you do?" question comes up), but when someone you thought was a friend, a best friend even can turn around and say "we all get tired" that's one that really cuts. Even my own father has been known to almost compete with me, that he's 63, he must be much more tired than I am (because he has emphysema, through his own choice to smoke!). I've had this illness for 18 years, and it has robbed me of my teens, youth, and all the things young people should be able to do, good and bad! No one can understand how that feels, unless they've walked the same path.
Having said that people can be almost cruel in their comments, I have to say the ones (and they are few and far between) that understand almost make up for the ignorant comments the rest make!
I will be posting a link to this site onto my facebook page, so my friend can have a read.
June 1, 2010 - 7:09pmThis Comment
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