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Anonymous

Hello Everyone!

I have been a sufferer of Chronic Fatigue Syndrome ever since moving to the Northern Virginia area.
The only thing I can attribute this to is Lyme Disease and Epstein Barr Virus.I tested positive for Lyme 8 years ago.At the same time also tested positive for Epstein Barr Virus titer and believed to have had mono .

In addition, I have had several blood tests that were positive for c-reactive protein or inflammation in my bloodstream.The doctors could never tell exactly where the inflammation was coming from.Further testing always showed negative for Lyme etc.. but one can have Lyme with a negative test result I have read. So I also sit in ruins daily from CFS and Fibromyalgia for 10 years now . It has devastated my daily life as I cannot do the things I use to do.I have put on weight... am in the middle of changing life or perimenopausal.

I have tried Effexor xr years ago however that made me gain 40lbs in 1 year. You can imagine going from 120lbs and 5'3 to 160lbs plus .I only tried Effexor xr because I thought maybe I am depressed so let me give it a try!However, it was not depression, it was chronic fatigue syndrome !

CFS ultimately make one feel down as the other person who posted has stated. The medicine did make me feel a little better, but my blood pressure was elevated and I was becoming unhealthy so I got off of them and lost 25lbs. which was great .I am still battling CFS and regained the weight back 8 years later! I attribute this weight gain to aging and inactivity due to CFS and Fibromyalgia, and cannot seem to take it off this time around. The doctor said he thinks I am going through a syndrome of some sort such as Epstein Barr Syndrome, but who knows? All this and perimeno bodily changes is just awful! I never dreamed I would ever feel this way.For those who are skeptical just makes things worse.

Hopefully one day the medical community will begin to unravel the mystery of CFS and Fibromyalgia. I hope there will be a cure for this dreaded illness/ condition. I thank the previous person who posted about CFS and her plight with it, and hope and and pray one day soon the medical community will pay more close attention to CFS and Fibromyalgia. I was always in good shape physically, great wife and mother, clean fanatic and a good cook.

These days it is very difficult for me to clean and cook let alone leave my home.Altho I do get out on occasion, I am too achy and fatigued to even get to the doctors!When I do go to the docs it is a rarity as I feel whats the use!They won't find anything to cure!

Thanks for listening.
Pat

February 18, 2010 - 12:22pm

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