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HERWriter (reply to Anonymous)

Thank you for sharing your story.

I am by no means a medical expert on this condition. Wisconsonite has also posted about her experiences and may be of more help than I can be.So i would follow-up with MayoClinic and the other institutions as she has suggested.

From what I can remember of my research, doctors generally don't know how patients get it or why, and has baffled them as to how it impacts otherwise healthy people. It sounds like even though the condition hasn't completely cleared, yet, you are stable and hopefully your recent test results will show that you're making progress.

I'm sorry I can't be of much more direct help, but please keep as posted as you're able.

May 23, 2013 - 1:01pm

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