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Hi Lisa,
Let me first start by saying I am so sorry to hear that your son is struggling with this very ugly disease. He is so young.

Thank you so much for the information on the support group. I'm actually already a member! I've shared my story and I've read many stories also. Do you find that the medical professionals are vocal though?? I don't see much in terms of feedback from them...
Maybe I'm not utilizing it as much as I should...

Also, thanks for the link to Collin's Quest. It's great.

Take care. Stay strong...
Its funny, I don't know you but just from reading your blog and seeing you on Collin's site, your love and support is just like the love my mom has for me. Although I'm much older (I was diagnosed @ the age of 24) my mother is always at my side. I say all this to say, you are the most important person in his life right now. And even though he may not say it enough, thank you thank you thank you, for being there for him!

Talk to you again soon.

August 9, 2010 - 8:32am

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