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Anonymous

Hi Chris, I am not really sure about the purpose of this page but I do appreciate your causing awareness to this rare disorder. Your description is a bit extreme for GS patients as they do not require Chemotherapy to manage the disorder. There are Chemopreventitive measures that can be used successfully for patients with an advanced or extreme case of GS but the vast majority will not require Chemotherapy for the syndrome in their lifetime.

Regards,

Bud Caruso

April 4, 2010 - 5:31pm

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