I've had it for years. One particular bad flare up hospitalized me for 2 weeks. I went to every Dr around and none of them knew what to do with me (and like you, these Dr’s did not have other Bechet’s patients either). They put me on all sorts of prescriptions etc and nothing helped.
I got mine 99% under control by going to an allergy Dr and finding out exactly what I was allergic to an/or even mildly allergic to and avoiding these things like the plague. I was unknowingly allergic to several food items which constantly caused flare ups.
Controlling what I ate changed my life with Bechet’s. I strongly urge you to go see an allergy dr. The allergy doc will probably tell you that you are wacko and will tell you it wont help, but with Bechet’s, unfortunately you have to often fight an uphill battle with the dr’s who don’t know anything about it.
Avoiding things I’m mildly allergic to has been the ONLY thing that worked for me after years of Dr’s and all sorts of crazy scary prescription drugs. Have the allergy folks test you for everything they have.
It might work, it might not - I can just tell you it's worth a shot. Several people have managed theirs thsi way.
Also, when you have an outbreak – soak a Q-tip in tequila and put it directly on the ulcer 2-3 times per day. It hurts like nothing else, but it shortens the ulcers stay from 2 weeks down to a few days.
There are several conferences through the year on Bechet’s.
This site usually posts events in the US.
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I've had it for years. One particular bad flare up hospitalized me for 2 weeks. I went to every Dr around and none of them knew what to do with me (and like you, these Dr’s did not have other Bechet’s patients either). They put me on all sorts of prescriptions etc and nothing helped.
I got mine 99% under control by going to an allergy Dr and finding out exactly what I was allergic to an/or even mildly allergic to and avoiding these things like the plague. I was unknowingly allergic to several food items which constantly caused flare ups.
Controlling what I ate changed my life with Bechet’s. I strongly urge you to go see an allergy dr. The allergy doc will probably tell you that you are wacko and will tell you it wont help, but with Bechet’s, unfortunately you have to often fight an uphill battle with the dr’s who don’t know anything about it.
Avoiding things I’m mildly allergic to has been the ONLY thing that worked for me after years of Dr’s and all sorts of crazy scary prescription drugs. Have the allergy folks test you for everything they have.
It might work, it might not - I can just tell you it's worth a shot. Several people have managed theirs thsi way.
Also, when you have an outbreak – soak a Q-tip in tequila and put it directly on the ulcer 2-3 times per day. It hurts like nothing else, but it shortens the ulcers stay from 2 weeks down to a few days.
There are several conferences through the year on Bechet’s.
This site usually posts events in the US.
http://www.behcets.com/site/c.8oIJJRPsGcISF/b.9279471/k.C8CA/Events.htm
April 14, 2016 - 9:05amThis Comment
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