I am 2 years late for this entry - but am posting for anyone else out there who is looking for help for paras or quads. I am an student of patient advocacy and have been working with a friend of mine who has MS and is a cancer survivor. We trusted that the neuro, the GP, and the visiting physical therapist would know enough to send us in the direction of a specialist if we ever needed one, but I've learned that this often isn't the case.
In fact - we'd been to a physiatrist (even spell check doesn't acknowledge that word), who did nothing but sign the paperwork I needed to get my friend her low air loss mattress. Beyond that, she wasn't interested in this crooked person in her ill-fitting wheelchair.
In searching for approval for a new wheelchair, and because our old physiatrist is no longer practicing - we were referred to a new one. This guy took one look at my friend and showed me what a pro-active physiatrist looks like.
Recap:
1) Trust your instincts. If your situation doesn't feel right, it likely isn't.
2) A physiatrist is who you need.
3) Not all physiatrists are created equal.
4) Some physiatrists make para and quad care their specialty.
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I am 2 years late for this entry - but am posting for anyone else out there who is looking for help for paras or quads. I am an student of patient advocacy and have been working with a friend of mine who has MS and is a cancer survivor. We trusted that the neuro, the GP, and the visiting physical therapist would know enough to send us in the direction of a specialist if we ever needed one, but I've learned that this often isn't the case.
In fact - we'd been to a physiatrist (even spell check doesn't acknowledge that word), who did nothing but sign the paperwork I needed to get my friend her low air loss mattress. Beyond that, she wasn't interested in this crooked person in her ill-fitting wheelchair.
In searching for approval for a new wheelchair, and because our old physiatrist is no longer practicing - we were referred to a new one. This guy took one look at my friend and showed me what a pro-active physiatrist looks like.
Recap:
July 5, 2012 - 4:35pm1) Trust your instincts. If your situation doesn't feel right, it likely isn't.
2) A physiatrist is who you need.
3) Not all physiatrists are created equal.
4) Some physiatrists make para and quad care their specialty.
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