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Hi heartbroken - It's a tragic loss that your Natalie is gone at such a young age. Thank you for taking the time to let others know about her and how much you care for her and miss her.

I understand your frustration is seeing other medical conditions receive more attention. Sadly, there are some causes that have more resources than others do and hundreds of terminal illnesses get little attention.

Our healthcare system does a poor job in helping young people with cancer. This is changing, thanks to many people in their 20's and 30's who are refusing to go along with the old system, but it's still not the type of care and concern and informed support that young people need.

I hope at some point you will find the strength to help educate others about pulmonary fibrosis, just as you have done by writing to EmpowHER.

According to the Pulmonary Fibrosis Foundation, the most recent estimates indicate that approximately 128,000 Americans are affected, although there are published estimates that suggest the number may be as high as 200,000. More importantly, it's anticipated that the number of diagnosed individuals will continue to increase.

There are many people who would benefit from your efforts to educate the public, and I hope you will continue to speak out and tell Natalie's story.

Take care,
Pat

June 11, 2010 - 5:58pm

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