Me again. This morning as I was watching the Today show, I saw a piece they did on idiopathic pulmonary fibrosis that you might be very interested in. A man named Bob O'Rourke was diagnosed with it 3.5 years ago. "Idiopathic" means they don't know what causes it, and they have no idea what caused it in Mr. O'Rourke. The irony is that he spent his career working around the scientists of Cal Tech. And yet he is faced with this disease that no one truly understands.
His only option is a lung transplant, but of course that's a very difficult operation and the waiting list is long. Despite all the work he did at Cal Tech over the years, he says that publicizing the cause of pulmonary fibrosis is more important to him than anything else he's accomplished.
"Before I take my dying breath, I'm going to make this a household word," he tells the interviewer.
When I searched for Bob O'Rourke on the internet, I found that he's been very active in trying to get the word out. Check out these links:
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Heartbroken,
Me again. This morning as I was watching the Today show, I saw a piece they did on idiopathic pulmonary fibrosis that you might be very interested in. A man named Bob O'Rourke was diagnosed with it 3.5 years ago. "Idiopathic" means they don't know what causes it, and they have no idea what caused it in Mr. O'Rourke. The irony is that he spent his career working around the scientists of Cal Tech. And yet he is faced with this disease that no one truly understands.
His only option is a lung transplant, but of course that's a very difficult operation and the waiting list is long. Despite all the work he did at Cal Tech over the years, he says that publicizing the cause of pulmonary fibrosis is more important to him than anything else he's accomplished.
"Before I take my dying breath, I'm going to make this a household word," he tells the interviewer.
When I searched for Bob O'Rourke on the internet, I found that he's been very active in trying to get the word out. Check out these links:
http://www.sgvtribune.com/news/ci_15067014
http://www.prnewswire.com/news-releases/pulmonary-fibrosis-cpf-to-receive-national-media-attention-on-nbcs-today-show-via-california-mans-desperate-fight-for-survival-96308289.html
And here's a "We Love Bob O'Rourke" Facebook page:
http://www.facebook.com/pages/We-Love-Bob-ORourke/114695968555261
I know this doesn't make your loss of Natalie any easier. But know that you are not alone in trying to get the word out.
June 15, 2010 - 9:16amThis Comment
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