Sandi - Thanks so much for your response and for posting my comment on your blog. The conference is being provided by a patient support organization, and their representative does want to include patients. The person who is questioning the need is a patient/community volunteer.
Diane - The conference is pretty much on one topic. If that topic is to be explored completely for those in the audience then I think that includes making sure the patient perspective is a part of it.
As you both know, when you have cancer you lose control over many things and learn to accept it. You don't expect to be left out of your own support organization's outreach on your behalf.
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Sandi - Thanks so much for your response and for posting my comment on your blog. The conference is being provided by a patient support organization, and their representative does want to include patients. The person who is questioning the need is a patient/community volunteer.
Diane - The conference is pretty much on one topic. If that topic is to be explored completely for those in the audience then I think that includes making sure the patient perspective is a part of it.
As you both know, when you have cancer you lose control over many things and learn to accept it. You don't expect to be left out of your own support organization's outreach on your behalf.
June 16, 2010 - 6:56pmThis Comment
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