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HERWriter (reply to Anonymous)

My articles about CFS here on empowHER and on my website www.ncubator.ca talk quite a bit about the things that have brought improvement for me.

As to how it could cure a retrovirus? Who knows if it has? Who knows if I have XMRV? Who knows whether it is linked to the symptoms of CFS?

This is part of the reason we need research to be done. And when it's been done it needs to be published.

For all I know I don't have XMRV. I may be a case of too many toxins, and food sensitivities. When a test for XMRV is available and affordable in my area, I will be able to find out.

One of the areas that the lack of research makes itself felt.

Who knows whether or not XMRV is a cause for CFS? That is what my article was about. We don't know. We need to find out. And till we find out the blood supply should not be at risk in case XMRV does cause CFS or other diseases, like prostate cancer.

Then again, maybe I do have XMRV. And maybe I'm not getting "cured". Maybe I'm in a form of remission, and will get flattened again when the retrovirus decides to give me another shakeup.

Once again -- I don't know. And the reason I don't know is because next to no research is done for this disease. And now that some has been done, the brakes have been put on its publication.

All I can really know for sure is this. I had some really bizarre and limiting symptoms for many years. And things were getting worse. I started seeing a naturopath who has been treating me for these last 3 years and within a few months of my first visit with her, I began to slowly improve.

I am worlds healthier and more functional than I've been in some years. Things seem to be continuing to point that direction. I hope I continue to heal.

That's really all I know for sure. Some research on CFS would go a long way to knowing more.

July 13, 2010 - 10:01am

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