Dina, I am the lady who first posted the original on this. Since everyone has an antonymous it is hard for you to discern which of these comments are mine. I have added over the last 3 years several comments. I have studied on my own why I got better. I think I have a basic understanding of why. I read the science of sunshine and D3 constantly. Literally everything on it. I am convinced my LPR was caused by low sunshine throughout a life time and low D levels. I can not tell you what to do. Though I ache reading how much you are suffering. I can tell you what I did to get better. It may not work for anyone else. But it did for me. My four teams of doctors...not one of them took a D or B12 test on me. Ever! After studying frantically in 2011, after all my doctors told me there was nothing more they could do for me...I studied and researched weeping most of the time. I thought I would die a slow painful beyond words death. I was slowly dying from not being able to eat or swallow properly as my throat was so ulcerated from acid vapor burns I had for 2 1/2 years. I was beyond ability to cope. How I stayed alive long enough to figure it out is a story all its own. My doctors were to busy, too focused on patent medicines and procedures and surgery. I tried everything they recommended. In the end they got cold probably because I was starting to ask to go out side of my provider for second opinions and they didn't want to pay for it. Anyway, during the 5 months before my accidental discovery of lack of sunshine on the torso and low D levels probably for my whole life, since my mother carried me, I also developed progressively leaking bladder. Worse and worse as the weeks and months went by. In those last 5 months before my discovery I also developed severly locked up shoulders blades. I was not only going from bad to worse after a nissan fundoplication, but now other parts of my body were not functioning properly. There in lies the mystery...I had a nissan fundoplication for LPR and tests showed I went from a PH study of 40 to .04. The fundo worked at least for the lower LES sphincter. But there is nothing that I can find for the UES. There is lies the problem. We have an anatomical problem. The sphincter at the top of the throat is not closing properly. Perhaps it even includes the lower sphincter. I'm not a doctor so I'm drawing from what I read. When I accidentally put a query into the web and asked "what strengthens muscles" up popped an article that athletes used Vitamin D to strengthen muscles during excercise. I remember looking at it...and it was one of those "ah ha" moments that made my whole brain race. I looked at that article and it hit me first, how is it that I did not know that D is made on the skin by sunshine. I did not know this!!!! I asked myself incredulous how was that I did not know this!! I'm in my 60's and I could not believe I did not know this basic fundamental science! And then my mind went into one nexus after another. I had pieced it together what was wrong with me. Most of us live at high latitudes on the planet. And on top of that most of us, since utero, have low D levels because we are inside all the time. Through evolution we roamed out in the sun. But then we came inside to do our living. In there lies the answers to so illnesses. I did not realize at that moment that my research on my illness was only the beginning of my discovery that 50-70% all modern day illnesses are directly linked back to low D levels all of our lives. Even people who live at the equator have low D levels because even they are staying inside to work and play. Even when we all go out to ride a bike, take a walk, go the beach, we either lather on sun screen, wear a hat and clothes covering our most important areas that make D on the skin. I sit here writing this and I still can not believe that this science of sunshine and higher D levels is not part of preventative medicine. Like you my doctors at the end blames my LPR on "some unknow stress". Pure misdiagnoses. In fact, when I examine all the illness of my whole life they, in my opinion, are directly connected to low sunshine and low D levels. So what is take D3 based on weight. I take 35 IU of D3 x each pound of weight. I also get in the nude and sun at the high sun hour. I don't overdo (20 minutes as I'm fair) and I don't wear sunscreen. I'm careful not to burn. I have a private backyard so I can do this. It took only 24 hours on D3 for the leaking bladder to clear up completely as well as the locked up shoulder blades. I was shocked...still am. I ask myself all the time how come my doctors didn't try this. How come I had 3 endocronologists, who study hormones (D3 is a pre-hormone), and not one of them ever thought of testing me for D. It goes beyond the pale....I'm just so disgusted I suffered so much....and I'm deeply troubled that the entire world population is at great risk for something so simple to prevent. When I look at the list of illnesses caused by low D levels and low B12 I'm livid that it is not part of preventiative medicine. Additionally, I eat lot more greens and raw nuts like sunflower seeds, almonds and pistachios. All of these provide so many co-factors for D to work. Magnesium is one of the most important co-factors that I make I get naturally in my food, and I take a epsom salt bath twice a week to get magnesium dermal. I also use a bit of magnesium oil on my skin as I think getting magnesium naturally through the skin or food is a better way. Though this is only my conclusion after all my personal research. Because I started off a bit too low on D3 for the first two years I think my LPR was really slow to dissipate and go into a type of remission of sorts. Had I taken D3 at a dose based on weight it might now have taken me so long to slowly have LPR fade away. But today I can say that my LPR is in "remission". I keep my D3 levels hovering at US score of 70-80. And I notice that whenever my D score falls below 62 LPR starts to ever so slowly come back. What I do then is take 10,000 IU of D3 for 3 straight days and then drop back down to the amount I take based on weight: 35 IU D3 x each pound of weight. It's been almost 5 years and I see slow imperceptible improvements in my total health. My legs are stronger, my eyes have a better exam outcomes, I'm not puffy anymore, I sleep better, my skin under my eyes are no longer dark, I don't get as many colds...I feel better than when I was 20 years old. I spent my whole life so tired. I dragged through life. And so many illnesses that doctors couldn't explain. I suspect it was all caused by low D/low sunshine my whole life. I could weep for all the populations of the planet who suffer with so many illnesses and I suspect the root cause is low D levels since utero. Too sad. I suffered so much. I don't know how I didn't succumb. I had so much to live for. I literally was a severely burn patient on the inside of my throat but my doctors seemed indifferent and they did not act like it was critical health problem I was dealing with. I asked my youngest daughter why she never doubted what I was saying was wrong...she said, "because Mama, all the years you raised me, no matter how sick you were, you never complained, you never took off from work, you went to college sick and never complained; I knew when you said you throat was seared that you did not have a "stress" issue. That it was real". I was lucky I had a few people who really knew me and that I wasn't making it up. But my ENT appointments I have to say the head ENT said I was severely burned but other than that he was mum. All my doctors were. I think they didn't know what to do so they cut me lose...I studied and wept non stop until I pieced together what worked for me. I hope my story gives you some support and knowledge. One more thing, I do make sure I get a bit of probiotics and or small piece of brie cheese for good bacteria to thrive in the gut. I consider it very important for my B12 levels. And I use a B12/B vitamins dremal patch called VIE which I can't find on amazon anymore. I still avoid tomatoes and raw onions and very spicy foods but other than that I have a very normal life now and feel health even though I'm 64 and spent my whole life low D levels/low sunshine. What a silent crime this is. The science is on the books its just it hasn't been brought into preventative medicine yet. But hopefully this will change over the next 10 years. But I don't have 10 years to wait for my doctors to catch up. Elena
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Dina, I am the lady who first posted the original on this. Since everyone has an antonymous it is hard for you to discern which of these comments are mine. I have added over the last 3 years several comments. I have studied on my own why I got better. I think I have a basic understanding of why. I read the science of sunshine and D3 constantly. Literally everything on it. I am convinced my LPR was caused by low sunshine throughout a life time and low D levels. I can not tell you what to do. Though I ache reading how much you are suffering. I can tell you what I did to get better. It may not work for anyone else. But it did for me. My four teams of doctors...not one of them took a D or B12 test on me. Ever! After studying frantically in 2011, after all my doctors told me there was nothing more they could do for me...I studied and researched weeping most of the time. I thought I would die a slow painful beyond words death. I was slowly dying from not being able to eat or swallow properly as my throat was so ulcerated from acid vapor burns I had for 2 1/2 years. I was beyond ability to cope. How I stayed alive long enough to figure it out is a story all its own. My doctors were to busy, too focused on patent medicines and procedures and surgery. I tried everything they recommended. In the end they got cold probably because I was starting to ask to go out side of my provider for second opinions and they didn't want to pay for it. Anyway, during the 5 months before my accidental discovery of lack of sunshine on the torso and low D levels probably for my whole life, since my mother carried me, I also developed progressively leaking bladder. Worse and worse as the weeks and months went by. In those last 5 months before my discovery I also developed severly locked up shoulders blades. I was not only going from bad to worse after a nissan fundoplication, but now other parts of my body were not functioning properly. There in lies the mystery...I had a nissan fundoplication for LPR and tests showed I went from a PH study of 40 to .04. The fundo worked at least for the lower LES sphincter. But there is nothing that I can find for the UES. There is lies the problem. We have an anatomical problem. The sphincter at the top of the throat is not closing properly. Perhaps it even includes the lower sphincter. I'm not a doctor so I'm drawing from what I read. When I accidentally put a query into the web and asked "what strengthens muscles" up popped an article that athletes used Vitamin D to strengthen muscles during excercise. I remember looking at it...and it was one of those "ah ha" moments that made my whole brain race. I looked at that article and it hit me first, how is it that I did not know that D is made on the skin by sunshine. I did not know this!!!! I asked myself incredulous how was that I did not know this!! I'm in my 60's and I could not believe I did not know this basic fundamental science! And then my mind went into one nexus after another. I had pieced it together what was wrong with me. Most of us live at high latitudes on the planet. And on top of that most of us, since utero, have low D levels because we are inside all the time. Through evolution we roamed out in the sun. But then we came inside to do our living. In there lies the answers to so illnesses. I did not realize at that moment that my research on my illness was only the beginning of my discovery that 50-70% all modern day illnesses are directly linked back to low D levels all of our lives. Even people who live at the equator have low D levels because even they are staying inside to work and play. Even when we all go out to ride a bike, take a walk, go the beach, we either lather on sun screen, wear a hat and clothes covering our most important areas that make D on the skin. I sit here writing this and I still can not believe that this science of sunshine and higher D levels is not part of preventative medicine. Like you my doctors at the end blames my LPR on "some unknow stress". Pure misdiagnoses. In fact, when I examine all the illness of my whole life they, in my opinion, are directly connected to low sunshine and low D levels. So what is take D3 based on weight. I take 35 IU of D3 x each pound of weight. I also get in the nude and sun at the high sun hour. I don't overdo (20 minutes as I'm fair) and I don't wear sunscreen. I'm careful not to burn. I have a private backyard so I can do this. It took only 24 hours on D3 for the leaking bladder to clear up completely as well as the locked up shoulder blades. I was shocked...still am. I ask myself all the time how come my doctors didn't try this. How come I had 3 endocronologists, who study hormones (D3 is a pre-hormone), and not one of them ever thought of testing me for D. It goes beyond the pale....I'm just so disgusted I suffered so much....and I'm deeply troubled that the entire world population is at great risk for something so simple to prevent. When I look at the list of illnesses caused by low D levels and low B12 I'm livid that it is not part of preventiative medicine. Additionally, I eat lot more greens and raw nuts like sunflower seeds, almonds and pistachios. All of these provide so many co-factors for D to work. Magnesium is one of the most important co-factors that I make I get naturally in my food, and I take a epsom salt bath twice a week to get magnesium dermal. I also use a bit of magnesium oil on my skin as I think getting magnesium naturally through the skin or food is a better way. Though this is only my conclusion after all my personal research. Because I started off a bit too low on D3 for the first two years I think my LPR was really slow to dissipate and go into a type of remission of sorts. Had I taken D3 at a dose based on weight it might now have taken me so long to slowly have LPR fade away. But today I can say that my LPR is in "remission". I keep my D3 levels hovering at US score of 70-80. And I notice that whenever my D score falls below 62 LPR starts to ever so slowly come back. What I do then is take 10,000 IU of D3 for 3 straight days and then drop back down to the amount I take based on weight: 35 IU D3 x each pound of weight. It's been almost 5 years and I see slow imperceptible improvements in my total health. My legs are stronger, my eyes have a better exam outcomes, I'm not puffy anymore, I sleep better, my skin under my eyes are no longer dark, I don't get as many colds...I feel better than when I was 20 years old. I spent my whole life so tired. I dragged through life. And so many illnesses that doctors couldn't explain. I suspect it was all caused by low D/low sunshine my whole life. I could weep for all the populations of the planet who suffer with so many illnesses and I suspect the root cause is low D levels since utero. Too sad. I suffered so much. I don't know how I didn't succumb. I had so much to live for. I literally was a severely burn patient on the inside of my throat but my doctors seemed indifferent and they did not act like it was critical health problem I was dealing with. I asked my youngest daughter why she never doubted what I was saying was wrong...she said, "because Mama, all the years you raised me, no matter how sick you were, you never complained, you never took off from work, you went to college sick and never complained; I knew when you said you throat was seared that you did not have a "stress" issue. That it was real". I was lucky I had a few people who really knew me and that I wasn't making it up. But my ENT appointments I have to say the head ENT said I was severely burned but other than that he was mum. All my doctors were. I think they didn't know what to do so they cut me lose...I studied and wept non stop until I pieced together what worked for me. I hope my story gives you some support and knowledge. One more thing, I do make sure I get a bit of probiotics and or small piece of brie cheese for good bacteria to thrive in the gut. I consider it very important for my B12 levels. And I use a B12/B vitamins dremal patch called VIE which I can't find on amazon anymore. I still avoid tomatoes and raw onions and very spicy foods but other than that I have a very normal life now and feel health even though I'm 64 and spent my whole life low D levels/low sunshine. What a silent crime this is. The science is on the books its just it hasn't been brought into preventative medicine yet. But hopefully this will change over the next 10 years. But I don't have 10 years to wait for my doctors to catch up. Elena
March 3, 2016 - 10:39pmThis Comment
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