Anon - No, you are not having a pity party. You are trying to do the right thing, which is to make your health your top priority and to advocate for yourself. This is something you must do, and if you don't your health will decline.
People who are healthy, and who do not have the limitations that come with a chronic and serious medical condition, have no way of understanding those limitations unless they are explained to them. It may be that you need some help with finding the right words to use so that people will not pity you or think less of you and will understand your situation such that they will also support you.
As a person who is living with a chronic form of leukemia, I deal with your situation every day. I've researched my medical condition thoroughly and have no problem explaining it to others and letting them know that my life is now different and how it is different. I also found a very helpful story online called the Spoon Theory that I sometimes use, and am going to share that with you. http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
If you don't take some steps to adjust your life to deal with your medical conditions you will be putting your health at risk, and as long as you are helping care for others you could also be putting them at risk. You seem like a very responsible person who would not want to do that. It may not be easy to do, but you must find a way to educate and inform your family that you need their help and support in finding a solution that will support your health needs, your daughter's concerns and your grandchildren. You do have a choice, and I hope you will make it and speak out. Good luck to you in doing so.
Comment Reply
Anon - No, you are not having a pity party. You are trying to do the right thing, which is to make your health your top priority and to advocate for yourself. This is something you must do, and if you don't your health will decline.
People who are healthy, and who do not have the limitations that come with a chronic and serious medical condition, have no way of understanding those limitations unless they are explained to them. It may be that you need some help with finding the right words to use so that people will not pity you or think less of you and will understand your situation such that they will also support you.
As a person who is living with a chronic form of leukemia, I deal with your situation every day. I've researched my medical condition thoroughly and have no problem explaining it to others and letting them know that my life is now different and how it is different. I also found a very helpful story online called the Spoon Theory that I sometimes use, and am going to share that with you. http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
If you don't take some steps to adjust your life to deal with your medical conditions you will be putting your health at risk, and as long as you are helping care for others you could also be putting them at risk. You seem like a very responsible person who would not want to do that. It may not be easy to do, but you must find a way to educate and inform your family that you need their help and support in finding a solution that will support your health needs, your daughter's concerns and your grandchildren. You do have a choice, and I hope you will make it and speak out. Good luck to you in doing so.
Take care,
December 30, 2010 - 7:34pmPat
This Comment
Reply