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Anonymous

My daughter too has conversion disorder and lost her long term memory on October 29th. We took her to the Mayo in Rochester, she went through two weeks of extensive testing to rule everything out (she fell at a high school XC meet on September 14, 2013 and landed very hard on her right hip...the true diagnosis was not revealed until December 6....all orthopedics used the original MRI...sadly three orthopedics missed the true injury, finally the fourth ortho seen it point blank on MRI and changed the physical therapy regime and within a month, she was walking normal again), anyway, after two weeks of testing at the Mayo, she was diagnosed with CD and did one week of in-patient to wean her off all the meds she had been put on. Then all three of us (she, my husband and I), attended a three week out-patient program (for various things like POTS and CD) through the Mayo...while the adolescents attended various classes (i.e. coping skills, occupational therapy, physical therapy, etc.), the parents attended classes too, whereby we learned how to parent and how to react to chronic pain syndrome, etc. Although she is home now, and still experiences a lot of anxiety, she deals with it through deep breathing, etc., she still has not regained her long term memory. The Mayo said it could take six months to a year for her brain to completely rewire. There was a 16 year old in the program that experienced the blindness, and when she left the Mayo she was no longer experiencing it. There were a few that when admitted, could not walk and were in wheelchairs, after the three week program, they were walking again. I highly recommend the Mayo Clinic! They helped bring our daughter out of her shell and taught her how to deal with her CD. Although everyday I pray that her long term memory will just simply come back, going through the program, really helped me to understand her condition so much better and how to parent differently with her condition. We have our ups and downs with her loss of memory, but at least we all have hope that one day it will come back.

June 23, 2014 - 5:07am

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