I am 18 years old, and I was diagnosed with CD when I was 13. My first symptom was blindness in my right eye. I then started experiencing seizures, inability to walk, and was very shaky. I would also pass out. I wnet to a ophthalmologist specialist who told me I was faking. But I eventually found someone who believed me and said I had CD. I went through therapy which didn't really help me but I just learned to cope with it on my own. The blindness slowly went away. I can now see but I have permanent damage in that eye, so it is weaker than my left so I just have a stronger prescription in my glasses for that side. It took almost a year to gain my vision back. Sometimes it will go blurry if I become really stressed and I have had a few seizures since diagnosis but it is less frequent. I hope this helps and your daughter gets better. I know it is really hard to live this disease because people will doubt you but you just have to remind yourself that it is a disease. Don't give up on searching for answers.
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I am 18 years old, and I was diagnosed with CD when I was 13. My first symptom was blindness in my right eye. I then started experiencing seizures, inability to walk, and was very shaky. I would also pass out. I wnet to a ophthalmologist specialist who told me I was faking. But I eventually found someone who believed me and said I had CD. I went through therapy which didn't really help me but I just learned to cope with it on my own. The blindness slowly went away. I can now see but I have permanent damage in that eye, so it is weaker than my left so I just have a stronger prescription in my glasses for that side. It took almost a year to gain my vision back. Sometimes it will go blurry if I become really stressed and I have had a few seizures since diagnosis but it is less frequent. I hope this helps and your daughter gets better. I know it is really hard to live this disease because people will doubt you but you just have to remind yourself that it is a disease. Don't give up on searching for answers.
December 5, 2016 - 11:43amThis Comment
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