I too have Guillian Barre Snydrom, I went to hospital at the time I thought I was having a stroke, I could not walk very well, I had fell serveral times in the days before, my feet and hands were numb, and tingling, I was using a walker, but thought it was connected somehow with a herrinated disk in my neck and a slipped disk in my back, until I presented as a stroke, they did not know what was wrong with me at the time I went to hospital , after every test in the book, they finally got with a Nero Surgen and he told them to do a spinal tap and that's how they found it, I was in so much pain, nothing they gave me would take the pain completely away, the next day was when they came in to tell me, it affected everything accept my lungs, thank God, I was either in so much pain or so out of it I didn,t know if I was coming or going, but with a Nums Blessing they figured it out, and I walked in two weeks after I started rehab, they called me there Christmas miracle , because they said they had never seen anyone to go from being totally not being able to stand or use my legs , to be walking with a walker and then a cane just does not happen, that was a year and a half ago and I still take 3200 mg of Nerroten a day to function I have short term memory loss, Dr. Tells me that that will go away when I get off of some meds! But Dr. Did say 5 years down the road I will recover, (BUT I WILL ALWAYS HAVE GBS), this Snydrom has knocked my socks off, I would not wish it on anyone.
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I too have Guillian Barre Snydrom, I went to hospital at the time I thought I was having a stroke, I could not walk very well, I had fell serveral times in the days before, my feet and hands were numb, and tingling, I was using a walker, but thought it was connected somehow with a herrinated disk in my neck and a slipped disk in my back, until I presented as a stroke, they did not know what was wrong with me at the time I went to hospital , after every test in the book, they finally got with a Nero Surgen and he told them to do a spinal tap and that's how they found it, I was in so much pain, nothing they gave me would take the pain completely away, the next day was when they came in to tell me, it affected everything accept my lungs, thank God, I was either in so much pain or so out of it I didn,t know if I was coming or going, but with a Nums Blessing they figured it out, and I walked in two weeks after I started rehab, they called me there Christmas miracle , because they said they had never seen anyone to go from being totally not being able to stand or use my legs , to be walking with a walker and then a cane just does not happen, that was a year and a half ago and I still take 3200 mg of Nerroten a day to function I have short term memory loss, Dr. Tells me that that will go away when I get off of some meds! But Dr. Did say 5 years down the road I will recover, (BUT I WILL ALWAYS HAVE GBS), this Snydrom has knocked my socks off, I would not wish it on anyone.
May 14, 2015 - 8:54pmThis Comment
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