Hi - thanks for your response. I wanted to get a conversation started here about APLS *without* lupus so people would know that the two don't necessarily go together.
I owe the fact that I'm alive to the wonderful people with APLS all over the world who shared information with me via the Internet when I finally got my diagnosis and doctors were totally clueless.
I am absolutely convinced that Serena Williams has APLS because she presented in exactly the same way I did: DVT, hematoma and PE. Considering that she is African-American, it also is likely that she has Lupus, from what I've read. I believe Jesse Ventura, who retired from public life after repeated PEs, has APLS too.
I wish they would come forward and become spokespersons for the disease, which is under-diagnosed and poorly treated.
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Hi - thanks for your response. I wanted to get a conversation started here about APLS *without* lupus so people would know that the two don't necessarily go together.
I owe the fact that I'm alive to the wonderful people with APLS all over the world who shared information with me via the Internet when I finally got my diagnosis and doctors were totally clueless.
I am absolutely convinced that Serena Williams has APLS because she presented in exactly the same way I did: DVT, hematoma and PE. Considering that she is African-American, it also is likely that she has Lupus, from what I've read. I believe Jesse Ventura, who retired from public life after repeated PEs, has APLS too.
I wish they would come forward and become spokespersons for the disease, which is under-diagnosed and poorly treated.
March 25, 2011 - 9:48pmThis Comment
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