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(reply to Maryann Gromisch RN)

Thanks maryann! When she had her echocardiogram done I could see a valve that would stay open and then closed for a long amount of time (well longer than it should I should say) and her family doctor said that that was the dystolic and systolic murmurs he heard! I forgot to mention that recently when she "passed out" she actually fell on my chest when I was lying down and I could feel her heart pumping! It literally felt like it was comming out of her chest and was pumping extremely fast and hard! When she had her anbulatory eeg done she passed out ten times (within 3 days) with it on and the specialist said that there was absolutely no indication of any "episodes" or seizure like activity evident and believes my child is faking! When she was 1 yr old she was diagnosed with epilepsy (her father also has epilepsy) and would have "grandmall"(?) seizures! These passing out epidodes are somewhat like the seizures I am used to but then again completely different! Her doctors are just "flabbergasted"! Thanks soo much for your concern and I will keep posted of any progress!

August 9, 2011 - 6:44pm

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