Hi,
I was diagnosed at 3 weeks in MA back in 1978 as part of the study that they used to get the state to screen all infants. I'm 34 now and I have no symptoms when my levels are normal and no learning disabilities. As a child, I had a pediatric endocrinologist and a regular pediatrician, and things were fine. Every once in a while a test would be slightly high or low so they would adjust my dose and retest six weeks later. Now, I'm on Levothyroxine - I alternate between 150 and 175 every other day. The only times I have symptoms are when my levels are off, and that's when I know it's time to get them checked (I get them checked yearly anyway). My mom says that she FREAKED when she heard about it because back then all she had for resources were extreme cases with pictures of babies with enormous goiters.
I can't have soy in the morning after I've taken my pill even now or my levels drop. (I was eating soy protein bars for breakfast for about a month and that was just a bad thyroid scene...) I've read that you're not supposed to give babies formula with soy within 1-2 hours of a L-T dose.
It really is a lifetime condition, but not one that is going to severely interfere with her life. It just means she'll have to take a pill every day and make sure to watch for things like fatigue and weight gain when there isn't another explanation for them.
~ Leslie
Comment Reply
Hi,
April 1, 2013 - 4:08pmI was diagnosed at 3 weeks in MA back in 1978 as part of the study that they used to get the state to screen all infants. I'm 34 now and I have no symptoms when my levels are normal and no learning disabilities. As a child, I had a pediatric endocrinologist and a regular pediatrician, and things were fine. Every once in a while a test would be slightly high or low so they would adjust my dose and retest six weeks later. Now, I'm on Levothyroxine - I alternate between 150 and 175 every other day. The only times I have symptoms are when my levels are off, and that's when I know it's time to get them checked (I get them checked yearly anyway). My mom says that she FREAKED when she heard about it because back then all she had for resources were extreme cases with pictures of babies with enormous goiters.
I can't have soy in the morning after I've taken my pill even now or my levels drop. (I was eating soy protein bars for breakfast for about a month and that was just a bad thyroid scene...) I've read that you're not supposed to give babies formula with soy within 1-2 hours of a L-T dose.
It really is a lifetime condition, but not one that is going to severely interfere with her life. It just means she'll have to take a pill every day and make sure to watch for things like fatigue and weight gain when there isn't another explanation for them.
~ Leslie
This Comment
Reply