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Anonymous (reply to Anonymous)

My son has had it for 3 years, he was recently diagnosed with it a few weeks ago. We are in the pre stages of finding a hospital to do light treatment. He was missed diagnosed for 3 years as having Atopic Dermatitis Eczema by several doctors. We finally brought him to Cleveland Clinic and he had a few biopsies done. He is 8 now, and dealing with it like a trooper, don't even think he remembers his skin looking normal. Wouldn't mind him connecting with young kids like him as well that are going through the same ordeal.

October 12, 2016 - 12:15pm

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