I just wanted to comment on a few comments you made, solely for the purpose of spreading information because I have been through a similar situation as this woman, and I, too, have problems with steroids. And I believe I can tell you WHY the steroids weren't working.
You mentioned: "I am surprised it was resistant to local, and even systemic steroids" and "ur symptoms should have responded to steroids" and "while u could use oral antihistamines or local soothing agents..."
Here is what the issue has been for myself and a few others I know who have allergic reactions to medication: our meds are more than their active ingredients in this day and age. And the majority of them contain a small list of very common INACTIVE ingredients that can make them a true horror for anyone who has chemical (or even food) allergies to one of those ingredients.
So when a person reacts to so many chemicals, it is nearly impossible to GET local steroids or systemic steroids or antihistamines or soothing agents that do not have some, or many, of the very chemicals that are causing them to react. This is as true of hypoallergenic meds as it is of anything else.
And if the reaction is bad enough to the chemical, the steroids are sometimes not enough to compensate for the increased allergic reaction to the added inactive ingredients in the steroid pill/solution itself.
I have had this specifically happen to me when I took steroids for an allergic reaction and they worked at first, but trying to taper off, I would hit a point where the steroids dropped below the level needed to deal with the reaction I was having to the inactive ingredients in the steroid itself and I would start reacting again.
Didn't make sense until we found out WHAT I was reacting to, and that it was in every vitamin supplement and medication that I was being given. I have to get my medication compounded now to avoid these reactions.
I don't mean this to take a slap at you, but I just wanted to say that as a person with this type of reaction, I can tell you that more doctors than not have had the same thoughts: steroids should work. And if they aren't working...it must be that the patient isn't taking them, is still getting the allergen, etc...
And yeah...the patient often IS still getting the allergens, only it is not necessarily due to a lack of care on their part. It can be due to exposure from the very meds that are supposed to help them. Assuming the patient IS doing what they are supposed to, and taking a step back to see what else might be introducing the allergen to their bodies, would really be a great help to those of us patients who have this type of issue.
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I just wanted to comment on a few comments you made, solely for the purpose of spreading information because I have been through a similar situation as this woman, and I, too, have problems with steroids. And I believe I can tell you WHY the steroids weren't working.
You mentioned: "I am surprised it was resistant to local, and even systemic steroids" and "ur symptoms should have responded to steroids" and "while u could use oral antihistamines or local soothing agents..."
Here is what the issue has been for myself and a few others I know who have allergic reactions to medication: our meds are more than their active ingredients in this day and age. And the majority of them contain a small list of very common INACTIVE ingredients that can make them a true horror for anyone who has chemical (or even food) allergies to one of those ingredients.
So when a person reacts to so many chemicals, it is nearly impossible to GET local steroids or systemic steroids or antihistamines or soothing agents that do not have some, or many, of the very chemicals that are causing them to react. This is as true of hypoallergenic meds as it is of anything else.
And if the reaction is bad enough to the chemical, the steroids are sometimes not enough to compensate for the increased allergic reaction to the added inactive ingredients in the steroid pill/solution itself.
I have had this specifically happen to me when I took steroids for an allergic reaction and they worked at first, but trying to taper off, I would hit a point where the steroids dropped below the level needed to deal with the reaction I was having to the inactive ingredients in the steroid itself and I would start reacting again.
Didn't make sense until we found out WHAT I was reacting to, and that it was in every vitamin supplement and medication that I was being given. I have to get my medication compounded now to avoid these reactions.
I don't mean this to take a slap at you, but I just wanted to say that as a person with this type of reaction, I can tell you that more doctors than not have had the same thoughts: steroids should work. And if they aren't working...it must be that the patient isn't taking them, is still getting the allergen, etc...
And yeah...the patient often IS still getting the allergens, only it is not necessarily due to a lack of care on their part. It can be due to exposure from the very meds that are supposed to help them. Assuming the patient IS doing what they are supposed to, and taking a step back to see what else might be introducing the allergen to their bodies, would really be a great help to those of us patients who have this type of issue.
June 4, 2016 - 7:32pmThis Comment
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