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Anonymous

It is actually quite funny that the general public impression seems to be that we're lazy (or at least we're constantly afraid that is what they think.) because all the research I've read about Lupus and Fibromyalgia both is that the patients diagnosed were at one time typically very hard workers, and on their good days still are.

When I was 16 I was in High School all day, then working the Drama office for hours before and after school, and I still found myself a fast food job. I worked my butt off! Before I realized what was ruining my body.

I became very ill, did two kinds of chemotherapy which knocked me into remission but also added to my Fibromyalgia. As soon as I was given the go ahead that I was in remission, I started working part time again.

Too bad my doctor didn't inform me that certain Lupus patients are severely effected by Fluorescent lighting, and I was knocked out of remission again. After that serious relapse and some more freaking chemotherapy, I quit working and applied for SSI.

It's a struggle everyday to force myself not to overwork my body. My brain is too busy for my body!

May 2, 2009 - 12:22pm

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