Well, it's been 2 years since my last posting here, on this topic. I finally rec'd my Social Security Disability in Oct. 2009, after a 3 year battle. I got 2 past years of payment, which gave me the opportunity to pay back all that had helped me in the past 3 years, pay off doctors and buy a car...with cash...all paid in full. It had been repo'd just over a year ago and I had to hide it because I live in the country and there is no transportation and I have dogs that might need a vet in a hurry. The repo was because I lost my jobs because of this illness...not because I was a scumbag. Anyway, as far as my pain and fatigue...it's the same or worse. It is never better. I am on Cymbalta and Hydrocodone, Flexeril and Xanex and am "OK" if I am just laying around...but I don't have any extra to take if I want, or have to, do physical housework. Nothing gets done. My present doc, just a GP, runs from the room like his pants are on fire when I ask for extra pain relief in order to get through my cleaning days. He's so afraid of narcotics. He believes that Cymbalta, or Savella or Lyrica are the ANSWERS to Fibro pain and difficulties. I can just imagine what the pharmaceutical reps tell him, because they sure aren't helping me. I can't take Savella because it has serotonin in it and has contraindications with some of my other meds.
Long story, short. I feel just as bad as ever and I don't have the stress of a job. I DO have a lot of stress because of the poverty medicare payments I receive for both my husband and me. He is in remission, finally, from pancreatic cancer, but he is still not employed and that is very hard on me. $1100 a month is all I get to take care of us. So, as you can see, nothing as improved for me in the pain and fatigue. I have been prescribed many different meds and have visited many docs over the years. Hopefully, my husband will get a job he's waiting for in Washington DC and then I can see someone at Johns Hopkins hospital. Maybe that'll be the help I need. I have tried to find another doctor but I've been turned down by about a dozen. No one wants to deal with fibro. I believe my current doc is the same way, but he doesn't say that... just writes a script that he feels comfortable with and won't listen to my pleas for help.
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Well, it's been 2 years since my last posting here, on this topic. I finally rec'd my Social Security Disability in Oct. 2009, after a 3 year battle. I got 2 past years of payment, which gave me the opportunity to pay back all that had helped me in the past 3 years, pay off doctors and buy a car...with cash...all paid in full. It had been repo'd just over a year ago and I had to hide it because I live in the country and there is no transportation and I have dogs that might need a vet in a hurry. The repo was because I lost my jobs because of this illness...not because I was a scumbag. Anyway, as far as my pain and fatigue...it's the same or worse. It is never better. I am on Cymbalta and Hydrocodone, Flexeril and Xanex and am "OK" if I am just laying around...but I don't have any extra to take if I want, or have to, do physical housework. Nothing gets done. My present doc, just a GP, runs from the room like his pants are on fire when I ask for extra pain relief in order to get through my cleaning days. He's so afraid of narcotics. He believes that Cymbalta, or Savella or Lyrica are the ANSWERS to Fibro pain and difficulties. I can just imagine what the pharmaceutical reps tell him, because they sure aren't helping me. I can't take Savella because it has serotonin in it and has contraindications with some of my other meds.
March 28, 2010 - 11:18pmLong story, short. I feel just as bad as ever and I don't have the stress of a job. I DO have a lot of stress because of the poverty medicare payments I receive for both my husband and me. He is in remission, finally, from pancreatic cancer, but he is still not employed and that is very hard on me. $1100 a month is all I get to take care of us. So, as you can see, nothing as improved for me in the pain and fatigue. I have been prescribed many different meds and have visited many docs over the years. Hopefully, my husband will get a job he's waiting for in Washington DC and then I can see someone at Johns Hopkins hospital. Maybe that'll be the help I need. I have tried to find another doctor but I've been turned down by about a dozen. No one wants to deal with fibro. I believe my current doc is the same way, but he doesn't say that... just writes a script that he feels comfortable with and won't listen to my pleas for help.
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