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A 7 year old with post concussion syndrome bad headaches not getting better

By January 5, 2011 - 7:05pm
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Our son fell at gym, had a moderate concussion 4 weeks ago, Cat Scan showed no bleeding. He seemed to be getting slightly better, headaches were less frequent. The last 5 days the headaches have increased and near constant, our Dr. recommended Motrin doses continually for 24 hours for awhile till he gets better. Could bleeding have started now ? We are doing cold compresses etc., our once full of energy joyful guy is in pain so much. He has always had tight muscles idiopathic toe walker, and tight muscles thru out his body, could this have anything to do with it?
Thanks so much

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Pat provided a great resource, and after reading it...the suggestion was also to contact a Physiatrist (brain rehabilitation specialist).

You can locate a Physiatrist at the Association of Academic Physiatrists:

Please keep us updated on your son's condition. I can not imagine going through all of the pain at such an early age, and you sound wonderful to be taking such great care of his body and emotions.

January 7, 2011 - 7:52pm
HERWriter Guide

alycia1 - Post concussion syndrome is complex and the symptoms can last for weeks, months and even up to a year. This information from Mayo Clinic may help you.

It's not clear to me whether the school doctor or a pediatrician or a physician who specializes in head injuries is treating your son. You may want to consider having him seen by a pediatric neurologist is the symptoms persist for a long time.

Since the Motrin has not relieved the symptoms and the severe headaches continue to persist, you need to contact your son's doctor for advice on next steps as soon as possible. You should not be afraid to contact the doctor's office, they want your son to have good care too and unless they hear from you they are going to assume that everything is going well. Let us know what happens when you have a chance - we know you are worried and concerned.

January 7, 2011 - 5:18pm

I am sorry you and your son are going through this!

Can you tell us if he has been diagnosed with any muscular or developmental delays, since he is an idiopathic toe walker?

Can you explain more what "he has always had tight muscles" means? Is this a specific diagnosis, or an observation?

When is your son's follow-up with the doctor?

January 6, 2011 - 1:38pm
EmpowHER Guest
Anonymous (reply to Alison Beaver)

Thank you for you help, our son always walked on his toes, we were very active with in home physio , since he responded to the physio the specialist ruled out CP and he was left with a Idiopathic toe walking diagnosis . He had tight muscles and tendons in his achilles, front and back legs and a little in the neck at times. What happened for the next 2 years between age 2-4 was just awful. With every growth spurt, he would be in extreme knee pain for weeks, he would cry 22 hours a day.
At 41/2 things got a little better the growth was not as extreme ( less then 1/2 inch at a time) By 5 we were able to do physio only twice daily. We were told the next hurdle for him would be pre-teen. However, the pain came back with just a bit too much walking or bike riding, or sometimes we didn't even know why. We would continue rubbing his knees with a anti inflammatory ( our life saver). At 6 , he had his first break from pain it was so little maybe 1-2 times a week and no more screaming during the night / day from pain, we could get rid of the discomfort by rubbing his knee for less then 20 mins.
At 61/2 we have no idea and the Dr. at Sick Kid's has no idea either, the tight muscles entered his back, hip , neck, arms, top of his foot. He no longer had the pain in his knees, but he couldn't sit cross legged without pain. His hip and foot brought him to tears. We were put on the acute pain program with a physio and she gave us exercises to stretch those muscles. They did a MRI ( head, spine) to rule out different diseases. The MRI came back normal. After 6 weeks he started to respond to the new exercises and he had an amazing summer/ fall. When he fell in Dec. at school he tripped over a ball and hit his head on the gym floor. He could not remember which way he fell, he was vomiting and had horrible headache. They said it was a moderate concussion. That was 4 weeks ago, 2 weeks ago , they headaches were letting up , only every second day and did not even need Tylenol. I don't know why but 6 days ago a headache started and never left for 3 days , he had some relief for 2 hours , they it came back like a lion. I took him back to the Dr., he recommended Motrin 24 hours for a while to get rid of the headaches. The headaches have been with him now for 6days and they are just so painful. Last night was a bad night for him, the front of his head was so sore, it was throbbing under my hand. The motrin gives him about a 11/2 hour relief( headache goes down to a very min.) but not gone altogether.
I am sorry this is so long, I guess I feel a little scared with everything.

January 6, 2011 - 7:54pm
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