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Anyone newly diagnosed with Celiac Disease having pain near lymph node next to breast?

By Anonymous November 17, 2010 - 5:17pm
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I have been diabetic for 32 years on insulin, I am 43 years old. Six weeks ago went to ER with severe pain in upper stomach, just under sternum. Was told to stop taking Nexium, which I was on since March 2010, as they thought I was having a reaction. Doc put me on a bland diet, toast, soup and crackers. Four days later, wound back in ER, worse that ever, lost 6 pounds in 5 days. This ER doctor did CAT scan, ultrasound and blood work, all normal. Suggested Celiac Disease, so I went gluten free on Oct 8th! Stomach pain and diahrrea went away after second day, fatigue slowly going away. But two weeks ago, I started having small area of pain next to right breast, kind of on ribs under arm, feels like a bruise. Regular doctor said no lymph trouble, maybe muscule pull. Ob/Gyn said could be related to cyst under right breast (2009 mammogram was fine) or small mass in armpit. Scheduled a mammogram and ultrasound next week. Still having pain on and off, mostly due to too much activity. Could lymph nodes be trying to clear toxins from my body? Can't get in to see Gastroenterologist until first week of December. Any thoughts? Thank you!!!!

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Here I am, over a year later, gluten free! Pain comes and goes for weeks at a time. Had diagnostic mamogram Feb 2011, nothing came up! Doc said stop wearing underwire bras. Did that and soreness is a bit better, but still there. A month ago, I started drinking Dunkin' Donuts coffee( my gluten free app said all Dunkin Donuts coffee is gluten free.) Started getting pain worse on right ribcage, near breast. Finally called Dunkin Donuts coffee, they said their products are not guaranteed gluten free! Harvesting equipment may have been used to harvest wheat! Maybe pain worsens with having gluten? Your thoughts are appreciated! Thanks!

January 10, 2012 - 11:11am
HERWriter Guide

Anon - There are many factors that can cause swollen lymph nodes. They include infection, a virus, inflammation and cancer. In response to your question I reviewed several celiac disease forums and found that a number of people had complaints of swollen lymph nodes, in a number of different places in the body, prior to being diagnosed and starting a gluten-free diet. Several mentioned that the inflammation went down after they became gluten-free but it did take several months.

It's good that you are having everything checked out, and having the mammogram and ultrasound, to determine what's going on. Let us know what you find out, and we wish the best for you. Pat

November 17, 2010 - 5:39pm
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