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3/31 I had bloodwork done to see if I have Lupus. It was specifically for that, about 5 tests or so. The labwork came back negative on 4/2. I think I have a flair coming on, with fever (~101), facial rash, joint pain (everywhere) worst in knees, elbows and wrists. Intolerance to cold, Reynauds when cold. Mouth sores, flaky skin sores.
Should I have the bloodwork redone while in a flair or would all the ANAs and other bad thing have been there anyhow? I've had this for about 20 years and it's getting worse, hence the request for the bloodtest.
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Anon - Here's what the Lupus Foundation says about the ANA test:
The ANA test is positive in almost all individuals with systemic lupus, and is the most sensitive diagnostic test currently available for confirming the diagnosis of systemic lupus when accompanied by typical clinical findings. A negative ANA test is strong evidence against lupus as the cause of a person's illness.
You can find additional information from the following resources:
http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutintroduction.aspx?a=440&z=9&page=2
http://www.labtestsonline.org/understanding/conditions/lupus.html
http://www.nlm.nih.gov/medlineplus/tutorials/lupus/htm/_no_50_no_0.htm
If you continue to believe you may have lupus after reviewing this information then you may want to have a second set of tests, but in general the negative ANA test would indicate that you do not have lupus.
Will you let us know your next steps?
Take care, Pat
April 5, 2010 - 6:24pmThis Comment
Thank you SO MUCH for taking the time to write your thoughtful response. I guess the best thing for me to do is proceed with figuring out what is wrong with me, even if it isn't Lupus. I was diagnosed with Fibromyalgia several years ago and had my ups and downs with that, but never ever this severe, with the fever, rash and skin lesions.
So, I think I'm off to meet a Rheumatologist and see what they think about all of it. My GP sees no problem with my heading that direction.
Again, thank you for your quick and thorough response, as well as the links!
Canalzone
April 6, 2010 - 3:59pmThis Comment
Canalzone - You're very welcome. Please let us know what you learn from the Rheumatologist and, of course, if that meeting sparks more questions that we can help research. I know this has to be frustrating for you and hopefully you will have some good information and support in the near future. I wish you the best. Pat
April 6, 2010 - 5:09pmThis Comment