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Do you have to be sexually active to have pelvic inflammatory disease?

By September 7, 2011 - 11:27pm
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I've had this ongoing abdominal pain for about ten years now.It was a very severe pain that i had never had before. It hurt to pee, when i sneezed/coughed, even to walk. It started when i was 13. First doctors thought it was appendicitis. Which it wasn't. They never found what the problem was. So this pain come and goes and i finally went back and i was diagnosed with PID. I wasn't sexually active when i was thirteen so i don't know how else i could have gotten it.

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thanks anonymous. Endometriosis has crossed my mind. I should bring that up to my doctor. Its funny because the wanted to test me for certain std's as well, but i knew i didn't have any! They told me the same thing they told you. That sometimes bacteria just makes its way up there. So yeah i don't know what to think at this point. But i really don't think its PID. Thanks for your input! I helped :)

September 24, 2011 - 12:32pm
EmpowHER Guest

I suffered from severe pelvic pain once every couple of months too BEFORE I was sexually active. I was told it was my bowel, "just period pain" this went on for years, then I became sexually active. after being hospitalised more than once, I was diagnosed with pid. Had a laparoscopy and they found adhesions and infection. They asked if I'd ever miscarried, not to my knowledge! I asked how I could get chlamydia if I wasn't having sex and was told " infections just get in sometimes. I recovered and went on to have 3 kids. They said I likely wouldn't be able to have kids. Between my 2nd and3 rd babies I had a miscarriage which caused endometriosis. I've been told by a nurse that I probably had endo all along, so maybe endos worth looking into. And remember drs don't always know what's best or right!

September 23, 2011 - 3:29am

hi thanks for your input. The doctor put me on antibiotics after she diagnosed me. I have been checked for cyst's and i don't have any. I am currently on birth control. I've been on the mirena IUD for almost three years now. I have had a UTI in the past and this feels similar, but i can distinguish the difference from the two. So i definitely know that that's not what this is. I don't know what else it could be. i have been checked for appendicitis, ovarian cysts,tubal pregnancy even given a colonoscopy! Just to see if there was anything going on in my intestines. I dont know maybe its nothing, i dont know at this point. :( Thanks for your help again! :)

September 9, 2011 - 5:19pm
EmpowHER Guest
Anonymous (reply to betty1988)

Hi Betty! I am going through the same things and i think it has everything to do with the merena iud all my pain started after it was inserted and now i have had it almost 2 1/2 years and i am getting it removed doctors will swear it's not but i have been in chats with women experiencing the same stuff as us. They tried to tell me they thought it was pelvic inflammatory disease which if you go to the merena site it will tell you merena can cause this and i have never had an std in my life and i go to all my check-ups and do blood work reg! hope this helps tiffany

January 12, 2012 - 1:43pm
(reply to betty1988)

check out this article I found

"Mirena IUD Side effects are more common in the first months after the installation of Mirena IUD, usually do not require additional therapy and disappear within a few months.
During the use of Mirena, 12% of women were found ovarian cysts. Increasing the size of ovarian follicles sometimes requires medical intervention.

While using Mirena IUD may arise inflammatory diseases of pelvic organs, sometimes-serious ones.
Mirena may perforate the uterine wall.

In 1-10% of women were observed: nausea, abdominal pain, pelvic or back pain, acne (blackheads), fluid retention, weight gain, breast engorgement, headache, mood instability, anxiety, depressive mood, vaginal discharge (bleach) or inflammation of the cervical canal.

In less than 1% of women were observed: infection of genital organs, decreased sex drive, loss or excessive hair growth, skin itch. "

That's only some of it, but here is the website i found it on.

September 9, 2011 - 5:32pm
(reply to betty1988)

Have you ever had gallstones?
I know that can cause a lot of pain, or a gallbladder attack. maybe even the mirena iud is giving you pain.
I wish you the best, and I hope you can get relief from this!

Good luck!

September 9, 2011 - 5:29pm

hi rose,

I was diagnosed about a week ago. I went to urgent care for the pain. It's weird because the pain is the EXACT same one that i started having was i was 13. The pain was in my lower right pelvic area. They didn't test me for a UTI or yeast infection. I'm pretty sure i have only had a UTI and yeast infection once. That was when i was pregnant. Other than that i can't remember ever having them when i was younger. I've never had an STD in my life. I have been tested several times along with my pap smears.

I dont know what to think of being diagnosed with PID. I read up on it and found that a lot of woman are hospitalized because of it. And with in the ten years of the ongoing pain i have only been to the doctor three times. And all three times, except the last visit, were unable to figure out the problem. The other times when the pain would come back i would just deal with the pain and rest. On the third day it would go away. Then come back a few months later. I dont think its PID. I read that if you go untreated you can get a lot worse. That was never the case with me. It simply went away on its own. Even the though the pain was pretty severe.

September 8, 2011 - 12:00pm
(reply to betty1988)

Hi betty,
I've had P.I.D twice (not STD related), and have Chronic U.T.I's (about 5 this year), and the pain you have sounds a lot like a U.T.I. Have you been on Antibiotics? P.I.D does get worse(at least for me it did) and I did have to get hospitalized for it both times. Maybe you have an ovarian cyst? I suffer from those too, and the pain with that is very similar to the what you are describing, and usually birth control helps with that, even though it took 2 years for mine to go away. I think you should get checked for a U.T.I and an Ovarian cyst. I'm no doctor (just a vet student haha), but I know a lot from experience.
Make sure the doctors listen to you.


September 8, 2011 - 5:35pm

Hi Betty,

PID is an infection of your reproductive organs. PID is caused by bacteria that travel to the reproductive organs. A single bacteria or mixture of several bacteria may cause the infection. The most common bacteria that initiate PID are gonorrhea and chlamydia.

When were you diagnosed with PID? It may not have been the same reason for your pain when you were 13 since Pelvic Inflammatory Disease is an infection acquired through sex.
Other vaginal infections can cause pain upon urination and a relentless pain/discomfort no matter what you do. Where you tested for other conditions such as UTI? Yeast Infection? etc. when you were 13?


September 8, 2011 - 8:42am
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