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Has anyone tried Botox injections to treat bladder spasms or incontinence? If so, what happened?

By HERWriter Guide January 6, 2010 - 5:53pm
 
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I've gotten an inquiry from an EmpowHER member, and need your help to assist her. She sought a second opinion from a new urologist who has recommended the use of Botox injections to treat her bladder spasms. Her primary urologist says he will not do this procedure because he doesn't believe there is enough data available. The treatment is not approved by the Food and Drug Administration (FDA).

She would really like to know if any of you have tried this, and what type of experience you had. Did the process help you? If so, for how long? Was it a treatment of last resort? Would you recommend it to others? Why or why not?

I've done some initial research, and learned that while this isn't an FDA-approved treatment it is being used successfully for some patients. According to the Mayo Clinic, Botox is sometimes injected into the muscles of the bladder to treat incontinence because it blocks the release of chemicals which cause muscle spasms. The injection is given under anesthesia and is effective for nine months to a year. Following are links to Mayo Clinic articles about this procedure:

http://www.mayoclinic.org/urinary-incontinence/treatment.html

http://www.mayoclinic.com/health/bladder-control-problems/WO00123

In addition, the following links also provide information on the use of Botox to control painful bladder spasms:

http://www2.wfubmc.edu/articles/Continence+Center/

http://findarticles.com/p/articles/mi_m0CYD/is_20_37/ai_93531942/

http://www.news-medical.net/news/2007/12/05/33254.aspx

http://www.poise.com/Learn/LifeAndHealth/BladderHealth/BotoxHelp.aspx

Since this treatment is not approved by the FDA, it's not usually covered by insurance. Some references said the cost was about $300 per injection, and length of time cited for the treatment's effectiveness was generally cited as between six to nine months.

If any of you can offer information that will assist this member it would be greatly appreciated.

Add a Comment33 Comments

EmpowHER Guest
Anonymous

I'm going in soon for my 6th set of injections. At first they only lasted about 6 months (as expected), but each time it lasts longer. This time it's been over a year. I have had mild cramps once after waking following the injections, otherwise there's been no side effects.
Before this, I was on my way to becoming a recluse. When I "leaked" it was more of a flood. The amount of liquid overwhelmed even the largest pad. I had tried every drug available, physical therapy, interstim, everything I could find.
has been a life changer for me! I'd recommend trying it after trying everything else.

March 15, 2017 - 7:20am
EmpowHER Guest
Anonymous

I have been having Botox bladder injections for two years. I have twenty injections every six months. It as changed my life . It works around a week after the treatment. But recently I have been having lower pain just above my pubic hair line so painful but only last seconds it feels like electric shocks. I'm waiting for scans to find out what it is but really have a feeling it's to do with the Botox.

March 14, 2017 - 3:49pm
EmpowHER Guest
Anonymous

I just got this done today ten injections so 100ml as it was first time and the pain sweet mother of Christ the pain ! I have an extremely high pain tolerance and found this rather painful and teary I have to get this done every 6 months and upped to 200ml hioebit works and was worth the pain during and after I feel sick to my stomach and in agony so here's hoping it works it takes two weeks to start becoming affective

December 9, 2016 - 9:50am
EmpowHER Guest
Anonymous

Anonymous

I will be receiving Botox injections in 2 months. I am hoping and praying that things work out. I have read some good and bad feedback about Botox. I am hoping to have good results.

January 21, 2016 - 9:24am
EmpowHER Guest
Anonymous (reply to Anonymous)

I'm going to have mine done! I had a stroke 4 years ago and I'm up peeing all night long.

October 28, 2016 - 3:31am
EmpowHER Guest
Anonymous

I am participating in a study for OAB and Boxtox injections. The first round Of injections would be a blind test. I would not know if I got Botox or saline, the second round, if I chose to continue, I would be garanteed the Botox. I know I must have gotten the Botox the first round, because it was wonderful, I felt like I was back to normal, with no side effects after a few days. The effects lasted about 7 months and I have no hesitations about doing it again, in fact I can hardly wait. I had a wonderful talented doctor, and maybe women who do suffer bad side effects have doctors that are not as experienced or talented.

November 8, 2015 - 6:16pm
EmpowHER Guest
Anonymous

I had Botox done about three weeks ago and have had to catherterise myself from day 3. I have had 2 UTI's (have 2nd one at the moment) And the antibiotics I have been given don't seem to be working. I've never taken so many pain relievers in my life. I really wish I had never had it. I was apprehensive about it I should have listened to myself instead of my urologist. I wasn't given any pain relief from the doctor or prophylaxis antibiotics and they still won't give me them I can't wait for it to wear off. I am from New Zealand

October 9, 2015 - 10:21pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I know how you feel I had my botox done in August last year stillbjn retention and Uris constantly with a throbbing bladder in retention

March 4, 2017 - 3:00pm
EmpowHER Guest
Anonymous

I am 45 and have interstitial cystitis and OAB and I tried the botox injection on yesterday and today my life has changed for the better in 1 day-- I use to go to the bathroom every 2 hours - last night was the first time that I was able to sleep through the night getting up only 1 time. I am now able to hold my urine 4-5 hours it's amazing and I will have it done again -- life feels normal again.

September 22, 2015 - 4:16pm
EmpowHER Guest
Anonymous

I had the botox injections done 2 yrs ago and am going for a repeat course next week. I was fortunate in not having to self-catheterise but the main reason it has lasted so long was I was on a high dose of amitriptyline for depression and that dried up everything - eyes, mouth and bladder. When I cut it down to 50mg I started with the bladder problems again. I don't know how safe botox is to keep having repeat doses and would probably want to try that new drug myrbetriq to see how it worked (which was the other option my urologist gave me 2 yrs ago). Has anyone tried it?

August 5, 2015 - 9:32am
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