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I am being screened for recurrance of thyroid cancer. Thyroid removed last year and radioiodine treatment completed. Have been off synthroid for 3 weeks; 3 weeks left before screening. Feeling cold and tired. Was wondering how long the body can sustain life without hormone therapy. How does it take in nutrition meanwhile without the homones?
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I was to my Dr. in January, I was to go back in February for more blood tests, I was only given enough pills for a month, I wasn't sure at that time if I could afford another office visit, so I haven't gone back for another tests, but in the mean while I'd asked my Dr to call in another prescription just to get me by for another month or so, and he refused... It's now going on 4 months without pills and I'm wondering how much longer I can go on... my Dr. should know better, but he says it's procedure, Always some kind of office politics with him, I need my thyroid pills, I've been noticing a weight gain, puffiness in my face in the mornings and just not feeling well. I will be going in for tests this coming week, as we can afford them again, but for him to refuse me my medication, should be unethical, if not illegal. Disappointed
May 30, 2016 - 11:25amThis Comment
You really need to get to a health food store and get some iodine or seek help by not taking your levothyroxine or Synthroid thyroid medicine. It the thyroid pretty much regulates the other organs in your body. I didn't have mine for like 2 weeks and I had a stroke. The doctor told me that the very reason could have been because of not taking the thyroid medicine. I am 62 years old so get to the health food store and at least get some sea kelp and or iodine they can tell you what to get but don't keep doing without you're putting your life in danger
October 17, 2017 - 4:26amThis Comment
I have been without my thyroid sense April 2011. I stoped taking medication in 2013 after I finished Chemo for breast cancer . It's now the end of 2017 and I am in the best health ever . I spent years trying to get Wright off and couldn't . The meds gave me mood swings depression . I think them unregulated gave me breast cancer at 27 . I did a gut rebalance and it seems to have made the difference. I actually have energy. I runs 150 miles a month or more now .
September 29, 2017 - 12:34amThis Comment
How did you balance your gut??
September 15, 2018 - 5:59amThis Comment
It's great that you're feeling well but it's dangerous to go without thyroid hormones. Maybe you were misdiagnosed from the beginning because anyone not taking a thyroid hormone isn't going to feel 'great' at all. That tiny gland plays a crucial role to all organs and to live without it or a synthetic med of some sort will leave the person feeling horrible......on a DAILY BASIS.
November 28, 2017 - 2:33pmThis Comment
You're mistaken. The body cannot live without any thyroid hormone. They must have left part of your thyroid when they did the surgery, or else you left something out of the story.
November 11, 2017 - 6:51amThis Comment
Both the World Health Organization and the FDA classify thyroid medication as ESSENTIAL, so you should now get a lawyer and sue for malpractice while also contacting your hospital ombudsmen, your insurance company, and maybe consider suing your insurance company as well.
July 30, 2017 - 2:37pmThis Comment
My doctor has done the same to me, I lost my coverage recently and because I have not gone in to a check up recently they won't refill me. The irony there is, ever since I've been diagnosed hypothyroid ( and believe it or not my THS results were 200.0! Not twenty, but 200.0 by the time I got treated I couldn't walk a block, I was so constipated I looked nine months pregnant and my whole body was swollen, I even fell asleep while out for dinner with friends in mid sentence, it was bad! But after three months I finally started feeling better, she says my tag was too high now, so she lowered it and I have not felt well since. But even though random tests are still as high as 80.0, she refuses to adjust my meds because most of the time my tests say I'm " cured" . I asked her how that's possible if I'm having all these symptoms and she just pointed out how bad I was BEFORE treatment!!! Then I decide to read up on my own, I asked if she could give me a full thyroid panel four or five times over several appointments and she just ignored me, I asked her superior finally and she claimed it was a @ waste of money" I couldn't believe it. Until I have my health coverage fixed I'm just concerned with getting my meds period, but once I do, I'm not sure if I should just try taking more on my own to see if I feel better, even if risky, or I've even debated going off them since I still have so many symtoms and try natural therapy, but if I could only get someone to do a full thyroid panel, is there a certain way I should request it? Is it truly going to help?
I too have been told my tryglicerides are high and I know it's thyroid related, same with my cholesterol but my doctor doesn't seem to believe me. And knowing how hypothyroid I was and am, how can she not even tell me if I'm Hashemoto hypothyroid or if it's something else? Is there a way to know?
But for now, I just want to know how long I can go without my meds, because it's been a couple weeks and I already feel week and sleep most the day, I wonder if I should go get stuck with a ER bill just for a refill or wait the 6 weeks until the local clinic can see me?
July 8, 2016 - 5:06pmThis Comment
If you can get an appointment with an Ear, nose and throat doctor, there is an additional test that can be performed for Hoshimoto disease. I️ was misdiagnosed with “ Graves’ disease “ until my doctor did this additional test on me. If anyone has had your thyroid completely removed, and you are not on any type of synthetic thyroid medication, eventually your body will not be able to regulate due to no thyroid function ( as the thyroid regulates several other organs in the body) worst case scenario, ( and this is word for word from my ENT doctor) and this is regarding HOSHIMOTO DISEASE ) the other vital organs that depend on the thyroid to keep them regulated cannot function properly. Eventually, you can fall into a coma and the body cannot substain any other further function. Which then results in death. Again, this is for those who suffer from Hoshimoto syndrome and this is exactly what my ENT SPECIALIST said to me word for word as I️ am just a simple person, meaning I️ could never explained this without it having been explained to me! Hope this helps for those who are seeking answers for this condition. Lastly, the only “ cure “ for this particular condition is a total thyroidectomy.
December 21, 2017 - 11:31amThis Comment
Hoshimotos is simply the autoimmune disease that can cause the destruction of the thyroid. It is not the actual thyroid disease. Hypithyroidism is the resulting disease and without treatment for that with hormones your thyroid cannot function. There are other causes as well for Hypothyroidism but this is one condition causing the thyroid not to work properly because it attacks and destroys it and the thyroid can no longer produce enough hornone. Hoshimoto is just once cause of this and Any PCP or Family Dr Endo or Rheumotologist can test your TPO antibodies to see if they are elevated over 35...not just an ENT. Removi g thr thyroid will also not rid you of Hoshimotos because again it is an autoimmune disease that is attacking the thyroid. Autoimmune diseases tend to ho together so changing diet and giving up gluten soy and sugars etc....can help reduce tpo antibodies and improve hoshimotos
January 18, 2018 - 10:00amThis Comment