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I just had surgery to remove a polyp & scar tissue from past surgeries. The Dr. also found endometriosis, which seems to be the cause of my infertility for the past year. What is endometriosis & how & why do you get it? Does it come back?

By March 21, 2011 - 9:34am
 
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Hi Dawn, I'm happy to share. I so know the feelings and struggles associated with this nasty condition. Like you my mom, sisters, aunts, girlfriends have not dealt with endomitriosis or fertility issues so it's hard for them to relate. It's always nice when you can meet others like you who are dealing with the same issues/struggles you are and can support and share with you their personal experiences.
I'm also blessed with an amazing and supportive husband who has been there for me every step of the way and continues to do so. It's just as hard on them as it is for us. Unfortunately, I had to have a complete hysterectomy last year because of the endomitriosis and fibroids, but am blessed with an amazing daughter and step-son.
You are doing the right things by researching and gathering as much information as you can. It really does help us become better advocates for our own health.
Keep us posted and let us know how you are doing.

March 22, 2011 - 4:43pm

Thank you Angelica. Somehow it really does help knowing that I'm not alone. I had struggled with that feeling a bit on & off. No one in my family or close circle of friends have ever had any of the issues that I have dealt with concerning fertility or any of the other obstacles I have going on. But I am so blessed to have a husband who is loving beyond words & has gone through every step with me with strength & care. We're looking into gathering as much information as possible regarding this new issue & we plan to handle it with as much love & grace as we can. Thank you again for sharing your story & information with me.

March 22, 2011 - 3:12pm

Hi Dawn,
Sorry to hear about your struggle with your pregnancy and now endometriosis. I had severe endometriosis for almost 20 years and seems like every time I had surgery to remove it it came back within a year. That's just been my experience not sure how it's been for others who suffer from this condition. I also had a miscarriage (2006) and infertility issues along the way. I was however blessed with a child in 1995, so I know it is possible to get pregnant if you have endometriosis - it just makes it harder. But it is possible so don't give up hope and keep trying.
Here are some videos I found helpful https://www.empowher.com/users/dr-paul-magtibay and https://www.empowher.com/endometriosis/content/what-endometriosis-dr-marchese-video.
Here's a group of women who are also suffering from this condition, I'm sure they would be happy to share their story with you https://www.empowher.com/groups/Endometriosis-sufferers.
Let me know if I can answer any other questions for you.
Take care,
Angelica

March 22, 2011 - 2:39pm
Guide

Hi Dawn,
Endometriosis is a disorder in which tissue that normally is found in the lining of the uterus (endometrium) grows outside of the uterus. The displaced cells most commonly develop in the ovaries, fallopian tubes and the outer surfaces of the uterus and the intestines.
It is not known what causes endometriosis, but one thought is retrograde menstruation: menstrual blood containing endometrial cells flows back through the fallopian tubes and into the pelvic cavity instead of out of the body. These displaced endometrial cells stick to the pelvic walls and surfaces of pelvic organs, where they grow and continue to thicken and bleed over the course of the menstrual cycle.
Endometriosis usually develops several years after the onset of menstruation.
Risk factors for endometriosis include:
never giving birth
one or more relatives with the disorder ( mother, sister or aunt)
menstrual cycles shorter than 27 days with bleeding lasting longer than eight days
any medical condition that prevents the normal passage of menstrual flow
a history of pelvic infection
Treatment options include medication to control pain and stop endometrial growth from getting worse. Surgery can be done to remove endometrial growths, scar tissue and adhesions. But, even with treatment, abnormal endometrial cells will come back.

March 21, 2011 - 4:35pm
(reply to Maryann Gromisch RN)

Thank you very much Maryann. I appreciate your time. I know that you're not familiar with my medical history, but in your experience, what percentage of women are able to get pregnant naturally after the removal of endometriosis? I am 37 years old, have had one miscarriage (2008), an ectopic pregnancy (mid 2009) & had a fibroid removed (Oct. 2009). We are hoping and praying for a chance to be parents. How fast do endometrial cells grow back?

March 21, 2011 - 5:25pm
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