Neurofibromatosis

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Neurofibromatosis Guide

Cary Cook BSN RN

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ask: I need a good dr and orthothpedic who treats neurofibromatosis in the state og ga

By Anonymous September 3, 2010 - 11:57am
 
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Susan Cody HERWriter Guide

Hi Anon

Thanks for your question! There maybe readers in GA who can give you some tips on this but we cannot recommend actual names to you.

However, there are ways to go about your search:

Are you asking for you or a child?

For a child - here are some helpful links:
http://www.ctf.org/Living-with-NF/georgia.html

For overall support (children and adults), lists and contacts for specialists as well as support groups for sufferers and caregivers, your best bet is to contact the The Acoustic Neuroma Association, that is fortunately headquartered in Cumming, GA.

Here is their contact information:

600 Peachtree Parkway
Suite 108
Cumming, GA 30041
Phone: 770-205-8211
FAX: 770-205-0239

www.anausa.org

As far as orthodontic care, you can get a referral from your dentist in GA or if you are moving to GA, then check out the Georgia Association of Orthodontics. You can locate them here: /www.gaortho.org and click on the "patient info" button. Or - you can head straight to it at www.braces.org

Best of luck in your search and remember to ensure all doctors or dentists you come into contact with are board certified or otherwise fully qualified.

Take care,
~Susan

September 3, 2010 - 1:39pm
Pat Elliott

Anon - There are several ways to search for an orthopedic specialist in Georgia.

This link goes to the WebMD Physician Directory and enables you to search for an orthopedic surgeon by city, state or zip code: http://doctor.webmd.com/physician_finder/home.aspx?sponsor=core

The Georgia Orthopedic Society provides a physician locater service here: http://www.georgiaorthosociety.com/

It's not clear to me, however, why you are seeking an orthopedic physician for this condition. The nonprofit support organization Neurofibromatosis, Inc. has a listing of medical facilities with an interest in neurofibromatosis. Some facilities have established NF Clinics; others see NF patients in the context of a more general clinic, such as one specializing in genetics, neurology or neurocutaneous disorders.They do not show any physicians listed in Georgia on their website but you can contact them directly for more information.

Neurofibromatosis, Inc.
http://nfnetwork.org/

Post Office Box 66884
Chicago, Illinois 60666
Phone: 1 800 942 6825

September 3, 2010 - 4:36pm
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