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ask: Low CBC counts with sjogren's syndrome...is this normal?

By Deb Custred Fink
 
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Every time I have a CBC done my levels are always low. My dr. said my lows are normal for me and to not worry about it. I am also anemic. Low platelet count, low white blood cell count, low red blood cell count.

Add a Comment6 Comments

Maryann Gromisch RN Guide

Hello MAK,
You are wise to educate yourself about this disease.
For starters. take a look at what is featured on the EmpowHER Sjogren's Syndrome page: http://www.empowher.com/condition/sjogrens-syndrome

Check out the website for the Sjogren's Syndrome Foundation
http://www.sjogrens.org/

The Mayo Clinic features an extensive article on the disease:
http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147

Hope this gets you started,

Maryann

May 10, 2012 - 5:23pm
EmpowHER Guest
Anonymous

I was recently diagnosed with sjogren's and am interested in learning all I can about this disease.

MAK

May 10, 2012 - 2:49pm
EmpowHER Guest
Anonymous

Hi , I as well have had, and continue to see my white blood and red blood counts drop every time they are taken, and this last one a few weeks ago I called the dr. to ask when does this become something to worry about, he said this is pretty routine with sjogrens and that I shouldnt worry yet. Last wbc was 3.2 and my rbc was 3.7 it has went down a little more each time so...J.R.

February 10, 2011 - 6:05pm
EmpowHER Guest
Anonymous

My RBC's, hematocrit and Hemoglobin are high. What significance does this have??

May 1, 2010 - 6:05pm
Alison Beaver (reply to Anonymous)

Hi,
Can you provide us with more information?

Do you have any conditions that your doctor was testing for?
What information did your doctor discuss with you, regarding these results?

Lab results may be high, and there may/may not be any significance; it is the context that matters most with blood test results. There are many different ranges of what is considered normal, high or low. Did your doctor talk with you about him/her being CONCERNED because your results are ABNORMALLY high? What was suggested as your next steps?

May 2, 2010 - 1:04pm
Pat Elliott HERWriter Guide

Hi Deb - Thanks for writing and sharing your concerns. Here's what the Scleroderma Foundation says in an article titled "Sjogren's 101"

Laboratory Tests
Only half of Sjögren patients have anti-SSA and/or anti-SSB (Sjögren’s Syndrome A and B) antibodies in their blood. Other tests which may be abnormal include the white blood cell count (low), total gamma globulin level (high), blood C3 and C4 complement levels (low C4), sedimentation rate (high) and rheumatoid factor (positive). http://www.scleroderma.org/medical/sjogrens_articles/sjogrens101.shtm

You can find additional information on the lab tests used for patients from the non-profit labtestsonline site: http://www.labtestsonline.org/understanding/conditions/sjogren.html

The site also has information on the tests used for anemic patients: http://www.labtestsonline.org/understanding/conditions/anemia.html

We hope you find this information helpful.

April 29, 2010 - 5:18pm
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