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My daughter has a hemangiomas on the outside on her vagina and i am worried about whether it will disappear or not?

By January 5, 2011 - 3:39pm
 
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i have not heard of any other children with it there and want to know if this is unusual and what will happen if it does not go away?

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EmpowHER Guest
Anonymous

Current Post: Since I posted last, I had a baby. The only complications that I have had is basically swelling or rashes. Also mole growth. Turns out I had a mole on the birth mark this whole time, and it had grown 8 times the original size. I had to have it removed with many of my other moles once given birth due to engorgement. Otherwise, no complications.

My Last Post: I have one on the outside of my who-ha. When I was little it was always inflamed even with a little bit of moister. This made potty training for my mother easy since I found it the most uncomfortable situation ever. When I got older, it didn't go away, but it wasn't quite as inflamed and noticeable. On days where I'm in a bathing suit or sweating a whole lot, I'll end up with it inflamed and with a rash that goes on the leg in the inside of my leg. It hurts extremely, and I usually put on some kind of baby rash creme and it usually helps. I really haven't had any side affects from any of my relationships, including my boyfriend of five years. If I hadn't said anything, especially when I've had rashes from heat, he said he would have never guessed or thought something was different.

October 15, 2015 - 4:16pm

July 28, 2017 - 1:44pm
EmpowHER Guest
Anonymous

Thank God I saw this thread. My daughter also has strawberry hemangioma on the left lip of her vagina. It appeared days after she was born, as she grows it became sore. Doctors said it's common to babies born small. At 2months it started bleeding lightly,few days later she didn't stop crying until I saw a big hole at the lower portion of her genitals. Rushed her to the doctor and found out that it grew a puss and it popped causing extreme pain. It was a nightmare bec she was very small and fragile. I don't want her to go thru that pain again. We used boiled guava leaves to clean the open wound and for faster healing. Since then,we've been vigilant changing her diapers putting creams and making sure it's not too dry and not too moist. hemangioma seems to be diminishing but I really hope the whole thing goes away without surgery. Now trying grapeseed oil (oral and direct to skin) and crossing my fingers. Looking for another doctor as well for 2nd opinion.

June 4, 2017 - 10:50pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Castor oil works wonders also! Its natural, very soothing, and helps heal fast.

October 22, 2017 - 7:04am
(reply to Anonymous)

My daughter was born and then at about 3 weeks old her hemangiomas started showing up. She ended up with 6 and now she only has 3 left and she is 4 years old now. The one on her neck was the biggest but I guess from milk getting on her neck when she was a baby it caused it to become ulcerated and was VERY painful for her so we were sent to a dermatologist and they did all kinds of tests and they ended up putting her on a certain type of blood pressure medicine so she had to be seen about every 3-4 weeks and she was on the medicine for about 6 months. It helped so much and caused the hemangioma to decrease in size and also it flattened out and wasn't raised anymore. My daughter also has one on her left vagina lip and its still the same size and raised and she just now complained of it today saying that it stings when she pee's.

July 28, 2017 - 1:17pm
EmpowHER Guest
Anonymous

My daughter has a hemangioma on right outer vagina lip but it spreads to the crease of her leg and all the way down her right butt cheek including her anal opening. Everytime she poops she screams in pain. It's a constant battle to keep it from being moist or to dry there's never a n inbetween. I'm so tired of seeing her in pain it's killing me. The pediatrician is sending her to a dermatologist. Are they going to be able to help or do I need to take her to a vascular doctor.

February 12, 2017 - 11:00am
EmpowHER Guest
Anonymous (reply to Anonymous)

I have one on my left libia. I'm now turning 22 and I do still have it. As I grew it grew causing a lot of pain and as a child I was never able to do anything. I've been to specialist such as a vain surgeon and a plastic surgeon. When I was 16 a plastic surgeon and a OB where able to remove a big chunk of it. Went from being the size of a golf ball to half the size. I remand problem free until my 20s . An OB where I now live refused to see me and sent me to a vascular surgeon. He did remove some vains but informed me since it was such a sensitive area he will not touch it again. I was told doctors believe every few years it will regrow but that hasn't happened. It has spread to my lower butt but so far in my journey no one will touch it anymore. I've never been to a dermatologist to tell you if you will get results. I wanted to share my store because I've been to doctors and they were only able to do something effectively once.

November 4, 2017 - 7:51am
EmpowHER Guest
Anonymous

My daughter, who's now almost 5, was born with one which covered her right outer labia. It was a nightmare. It would easily get sores on it with needed dressing (worst place for dressing) which of course needed constant checking and changing. She'd scream from pain all the time. It didn't help that as she grew, it grew too. It ended up about 5cms long and 2-3cms wide (that's now). When she was about 6 months or so, the GP referred me to a specialist team who put her on liquid Propranolol. It didn't go away completely but it's now got a lot of normal pigment instead of the nasty red, so the medical did get rid of a lot of blood vessels for it. It does only with kids up 3 or 4 years so, if anyone has a baby with one, get them on Propranolol, and stick with it. I only had my girl on it for about 18mths to 2 years. She still has some issues with it, but luckily no pain or sores forming.

January 25, 2016 - 7:24pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Wow, thank you for sharing I thought I was the only one with my daughter having one as well... She also cries of pain and I do see it has grown..

March 14, 2016 - 1:53pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I was born with a strawberry hemangioma on the outer vaginal lip. My Mother said that within weeks she went to change my diaper and it had begun to bleed. She took me to the doctor and after consulting with a few other doctors, he decided to use liquid nitrogen to cauterize it. It worked, not only did the bleeding stop but after a few weeks the whole hemangioma had disappeared. I was left with a small scar . Of course that was over 40 years ago,but I thought I would share. Never heard of anyone else having one in that particular area..

June 20, 2016 - 7:36pm
EmpowHER Guest
Anonymous

I have one on the outside of my who-ha. When I was little it was always inflamed even with a little bit of moister. This made potty training for my mother easy since I found it the most uncomfortable situation ever. When I got older, it didn't go away, but it wasn't quite as inflamed and noticeable. On days where I'm in a bathing suit or sweating a whole lot, I'll end up with it inflamed and with a rash that goes on the leg in the inside of my leg. It hurts extremely, and I usually put on some kind of baby rash creme and it usually helps. I really haven't had any side affects from any of my relationships, including my boyfriend of five years. If I hadn't said anything, especially when I've had rashes from heat, he said he would have never guessed or thought something was different.

October 15, 2015 - 4:16pm
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