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My 33 yr old daughter suffered an anoxic brain injury 4 1/2 years ago. I too am interested to find out about stem cell therapy for her as well. She has far exceeded any prognosis given and seemed to plateau at about 3 years, then about 6 months ago has greatly improved. So I feel her recovery is not over and would like to do anything I can to help her life and my granddaughter's life (who I have in my care). I would appreciate talking to you and others incase we can help each other find more answers and support.
January 5, 2011 - 4:05pmDeb
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Hi Deb. This post has given me hope. I've been told that 2 yrs of healing is pretty much all you get. July 26th will be 2 yrs since my 24 yr old daughter had a diabetic seizure lasting over 12 hrs, leaving her with an anoxic brain injury. My daughter has also far exceeded the physicians prognosis of death or if "lucky" vegetative state, but as her mother I want more. I would love to talk with you, if interested please email me. God Bless, Rhonda K
March 6, 2012 - 3:10pmHi Rhonda, I would love to talk to you further to help us both and our daughters....my email is debbiesharko@royallepage.ca
March 8, 2012 - 1:11pmDeb
Deb - Support groups and patient advocacy organizations can be very helpful in reaching others who are dealing with the same situation and gaining more information and support. There aren't many specifically for anoxic brain injury, but there are several for brain injury. Here are some links to help you:
January 5, 2011 - 6:09pmhttp://www.pedsbif.org/
http://www.dailystrength.org/c/Brain-Injury/support-group
http://www.braininjuryresources.org/tbiassocs.html
http://www.biausa.org/
https://secure.biausa.org/OnlineDirectory/Directory/SearchType1.aspx
Hi Anonymous
Thank you for finding EmpowHER and welcome! I'm so sorry your son had this injury last year; that has to be so difficult for the whole family.
I have read some new articles on stem cell treatments and these kinds of injuries so they are certainly being used. As to how much or how successfully is a bit of an unknown for now since this science is quite new. I would certainly advise you to ask his doctor about this.
We have had several questions and posts about these kind of brain injuries, some of young people so I recommend you take a look at some of our posts on the topic: http://www.empowher.com/community/ask/can-person-recover-anoxic-brain-in...
And you can read a lot more on our extensive Anoxic Brain Injury page here (where you can read all about treatments, news articles and stories from other sufferers and their families) : http://www.empowher.com/condition/anoxic-brain-injury
Anon, when is your son's next doctor visit? I assume you will also be attending? Are you preparing some research into stem cell treatment so you have the right questions to ask? Namely
-What kind of treatments are available?
-Does my son's injury qualify for treatment?
-What are the risks and benefits?
- Where will he have to go to get the treatment?
-What studies are available?
Make sure you have your ducks in a row and don't be afraid to ask more questions and take notes. If his doctor doesn't have this information, ask for a referral for someone that does.
We wish you and your son the best and please keep us posted.
November 24, 2010 - 1:51pm~Susan