I see information on EmpowHer about APLS only as it relates to Lupus. However, I've was diagnosed with, and have been treated for APLS for more than 10 years and I don't have Lupus. Neither does my hematologist, who is probably the only practicing physician with APLS.
I take high-dose Coumadin and have been relatively symptom-free, with occasional flares of inflammation, for the past 10 years. We keep my INR between 3 and 3.5 and I pretty much feel absolutely fine: no bruising, no bleeds, etc.
I am curious to know what percentage of APLS patients I fall in.
All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.